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US 
(o2S 


PROFESSIONAL       PROVIDER  PARTICIPATION 


EPSDT  -  MEDICHEK 


LOCAL       DEMONSTRATION  PROJECT 


WILL-GRUNDY       COUNTY       MEDICAL  SOCIETY 


FINAL  REPORT 


REPORTS 

RJ 
102 
.5 
13 

B76 
1976 


RONALD  R. 
EXECUTIVE 


BRYANT 
SECRETARY 


Since  1974   the  Will-Grundy  County  Medical  Society,  ini-ially 
under   subcontract   to   the   Committee   cn  Health  Care   of   the   Poor  of 
the   American  Medical  Association   and   later   in  direct  contract  with 
the   Social   and   Rehabilitation   Service   of   the   Department  of  Health, 
Education  and  Welfare,    has   sought   to   demonstrate  professional 
provider  participation  in  planning  for  the   successful  integration 
of  the   Sarlv  Periodic   Screening   Diagnosis   and  Treatment  Program 
into   the  public  and  private   sectors   of   the   health,   welfare  and 
social   systems   in  Will   County,    Illinois.      While   this   report  will 
detail   the   activities   of   the   1975-76   contract  period,    it   is   in  a 
larger   sense,    a   final   statement  of   the   role   of  private  physicians 
in  a  public-private  partnership  and  the   limited   success   in  devel- 
oping alternatives   to   traditional  modes   of  delivery. 

In  understanding   the   1975-76  project,    it   is   important  to 
remember   that   the  present  contract   is   an   extension   and  expansion 
of   the   initial   sub-contract.      The   1974-75   project  was  devoted  to 
exploring  alternative  methods   of  delivery  of  EPSDT  services  in 
private  office   settings   while   simultaneously  attempting   to  fac- 
ilitate  entry  of   EPSDT-eligible   children   into   the  health  care 
delivery  system  through  an   active   outreach  program  through 
communication  and  coordination  with  various  community  agencies 
offering  direct  or   indirect  services   to   the  Medicaid-el igible 
population.     At  the   same  time,   efforts  were  initiated  to  address 
bureaucratic   roadblocks  which   impeded   the   delivery  of  EPSDT  services. 

In  order   to   satisfy  the   goal   of   delivery   of   EPSDT  services 
in  private  office   settings   during   the   sub-contract  period,  the 
Society  expanded   a  rotation   system  of  assignment  of  patients  to 
physicians.      Under   the  program,   Medicaid-eligible  patients  con- 
tacted project   staff  and  were   assigned   to   a  volunteer  pool  of 
physicians.      To   increase  public  awareness   of   the  program,  outreach 
was   directed   through  the   local   Department  of  Public  Aid   and  through 
local   schools.      Project   staff  developed  record-keeping  mechanisms 
to   handle   the  assignment  of  patients   to  physicians   and   to  record 
the   results  of  those  contacts.      Since   the   system  was  maintained 
through  the   second  contract  period,    a  description  of   the  patient 
enrollment   and   family  history  files   appears   latar   in   this  report. 
In  an  attempt  to  minimize  bureaucratic  roadblocks,  physician 
volunteers   submitted   claim   forms   to   the  project  office   rather  than 
directly   to   the   Illinois   Department  of  Public   Aid.      A  system  of 
prior  claim  review  was   developed   to   eliminate   clerical   and  billing 
errors  which  delayed  payment   to  physicians   by  the   State   of  Illinois. 
As   an  additional   service,   project   staff  provided   training   to  pri- 
vate  office  personnel   in   the  preparation  of   complicated  forms. 


A  second  major  activity  of  the   1974-/5   subcontract  was  the 
participation   of   the   Society   in   a  mass   screening  program  of  elemen- 
tary  school   children  who   had   failed  to   complete  physical  examina- 
tions  as   required  by   state   law.      The  mass   screening  program,  co- 
ordinated with  the  Will  County  Health  Department  and  Joliet  Grade 
School   District   36,   provided   an  opportunity   to   identify  2PSDT- 
eligible   children  and  bring  them  into   the  program.      Although  over 
six  hundred   children  were   examined   in   the  program,   problems  of 
confidentiality  hampered   identification  of   SPSDT-eligibles .  The 
orogram  did   result   in  development  of  an  outline   to   address  these 
problems   and  to   improve  the   educational  opportunities  of  the 
program.      This   outline  was   included   as   an   integral  portion  of  the 
1975-75  contract. 

The  physician   rotation  program  was   discontinued  prior  to  the 
completion  of  the  1974-75   subcontract.      The  termination  was  the 
joint  result  of   a   successful   outreach  program  which   increased  the 
number  of  patients   at  greater  numbers   than  they   could  be  assimilated 
into  the  system  combined  with  a  steady  decrease   in  voluntary 
physician  participation  in  the  program.      The  decrease   in  physician 
participation  was   generally  attributed  to   three  factors: 

A.  Patient  overload  infringed  on  the  delivery  of  medical   care  to 
established  patients. 

B.  The  Medicaid  payment   system  of   the   Illinois   Department  of 
Public  Aid  was   unresponsive   to   the   increasing  cost  of  deliv- 
ering medical   care   and,    therefore,    the   program  was  not 
economically  sound, 

C.  Patients   did   not  conform  to  office   routine,    i.e.,    a  high  rate 
of  missed  appointments,    demanding  attitudes,    and  over- 
utilization  of  services. 

Thus,    although   local  project  staff  was   able   to   develop  a 
record-keeping  mechanism,    and  although  EPSDT  services  were  deliv- 
ered,   the   experience   of   the   1974-75   contract  posed  major  problems 
for   the   Society   in  meeting  the   terms   of   the  contract: 

A.      The   failure   of   attempts   to   establish  meaningful  ccmmunication 
with  the   Illinois   Department  of  Public   Health  and   the  Illinois 
Department  of  Public  Aid  which   jointly   share  administration 
of  the   EPSDT  program,    designated  as  Medichek   in  Illinois. 
The  program  carried  a   low  priority  in  both  departments  and 
attempts   to   resolve  bureaucratic   problems  which  increased 
the   level   of  physician   frustration  were   not   seriously  con- 
sidered by   either  department. 


(3) 


3.      Failure  to  resolve   the  problem  of  confidentiality.  Although 

t.-.e   Society  was   willing   to   explore  means   of  providing  services 
to   EPSDT-eligible   children,    we   were   consistently  unable  :c 
locate  eligibles  due   to   the  nature  of   federal   and  state 
statutes  which  protect  the   identity  of  public   aid  recipients. 
The   solution  to   this   problem  was   beyond   the  authority  and 
capability  of   the   Society  at   a   local   level   and  a   solution  was 
not   forthcoming   at   a   state   or  national  level. 

C.  The   growing   frustration  of  physicians    to   the   apparent  unres- 
ponsiveness  of   the   Illinois   Department  of   Public  Health,  the 
Illinois   Department  of  Public   Aid   and   the   Social   and  Rehabil- 
itation Service   of   the   Department  of   Health,    Education  and 
Welfare   to   long-identified  problems   combined  with   the  diffi- 
culties of  dealing  with  public  aid  patients   in  private  settings. 
Many  problems   were   initially  identified   in   "A  Report  on  Pro- 
fessional  Health  Provider   Participation   -   EPS DT  -  Medicaid  - 
1974",    and   in   fourteen   specific  problem  areas   discussed  in 

the   final   report  of   the   1974-75   subcontract  project. 

D.  A  growing   shortage  of  primary  care  physicians   in  the  area 
resulting   in   growing  patient   loads   as   population  of   the  area 
increased. 

The  role  of   the  American  Medical  Association  during  the  sub- 
contract period  was   to   serve   as   a   fiscal   intermediary,    to  assist 
in   creation  of   an   administrative  mechanism  and   to  provide  tech- 
nical  staff   support   in  operation  of  the   local   demonstration  project. 
The  vehicle  was   the   AMA ' s   Committee   on  Health  Care  of   the  Poor. 
Because   the   Committee  could  not   see  progress   in   solving  problems 
previously   identified  in   "A  Report  on  Professional   Health  Provider 
Participation   -   EP S DT  -   Medicaid   -   1974",    near   the   end  of  the 
subcontract  period,    the   Committee   decided   that   little   could  be 
accomplished  by  continuing.      While   the   American  Medical  Association 
recommended  discontinuation   in  direct  participation  with  the 
Department  of  Health,    Education  and  Welfare,    AMA  did  offer  to 
assist   the  Will-Grundy   County  Medical   Society   if   the   local  society 
decided  to   continue   the  project.      Despite   the   continuation  of  long 
identified  program  problems,    the   Social   and   Rehabilitation  Service, 
Medical   Services   Administration,   Department  of   Health,  Education 
and  Welfare   urged   the   Society   to   accept   a  direct   contract   to  con- 
tinue  the  project  with   the  proviso   that   the   American  Medical  Assoc- 
iation  accept   a   subcontract   for   second-year   activities.  Pressure 
was   applied  to  the   Society  through  project   staff  by  Medical  Services 
Administration   staff  members   at  an   evaluation  meeting  which  followed 
the  mass   school   screening  program  in   April,    1975.      This   view  pre- 
vailed over  the   reluctance  of  many  physicians   involved   in  the 


(4) 


The  major   elements   and   timetable   of   the   1975-7-5  ~ontrac_ 
were   jointly  developed  by   staff  of   the   Social   and  Rehabilitation 
Service  of   the   Department  of   Health,    Education   and  Welfare  and 
local  project   staff   in  a  period  of   less   than  thirty  days.  Many 
physicians  were  unaware  of  the   scope  of  these  developments.  The 
intent  of   the   new   contract  was   to   continue   to   seek  means  to 
develop  and   improve   communication  between   the  public    and  private 
sectors   and  to   explore   new  means   of  delivering  EPSDT  services. 
This   intent  was   expressed   in   the   statement   of  purpose   in  the 
scope  of  work  of   the   new  contract: 

"The  purpose  of   this  project   is   to   explore  alternative 
solutions   to  providing   the   assistance   needed  by  professional 
health  care  providers   attempting  to  meet   EPSDT  needs   in  solo 
practice   settings   and  to  develop   a  model  whereby  individual 
professional  health  care  providers   will   be   involved   in   a  Com- 
munity Health  Services  Program  which  draws  upon  existing  resources 
and  those   that  can  be   developed  through   a   coordinated   effort  of 
all  related   community  agencies   and   services   including   the  schools, 
under   the   sponsorship  of   the   local   Medical  Society". 

Implicit  in  this   statement  of  purpose   is  commitment  of  con- 
tinuation of  project   activities   developed  during   the  subcontract 
period  and  a  major   expansion  of  the  project  with  development  of 
the   Community  Health  Services   Program.      The  hurried  development 
of   the  new  contract  would   later  prove   to  be   a  major  weakness 
which  would  require   considerable   time   and  effort   to  repair. 


(5) 


THE  AREA 


It   is   important   to   provide   a  description  of   the  area  against 
which  the  project  has  been  projected  daring  both  contract  years. 
Will  County,    one  of   the  most  rapidly  growing   areas   in   the  State 
of   Illinois,    covers   845   square  miles   in   the   northeastern  section 
of   the   state.      The   county   is  within   fifty  miles   of  Chicago   and  is 
adjacent   to   the   counties   of  Cook,    DuPage,    Kane,    Kendall,  Grundy 
and  Kankakee   in   Illinois   and  Lake  County,    Indiana.      The  population 
of   Will   County   in    1970  was    249,498,    an   increase   of   30.2%  since 
1960.      Will   is   the   seventh  largest  of   102   counties   in   Illinois  and 
the  county's   growth  rate   from   1960   to   1970  was   exceeded  by  only 
two   other  counties   in   the   state.      The  population  pattern   for  the 
county   shows   an  11%   growth  rate   from   1970   to   1973   with  a   1973  census 
of   278,060.      The  majority  of  Will  County   is   rural  with   two  heavily 
urbanized  areas   located   in   the   northeastern  and  northwestern  por- 
tions of   the   county.      The   city  of  Joliet,   with  a  population  in 
excess  of   78,000,    located  in   the  northwestern  quadrant  of  the 
county,    is   the   governmental,    educational   and   cultural  center. 
Joliet,   with  its   adjoining  metropolitan  area,   has   been   the  center 
of   activity  during  both  contract  periods.      The   1970  population  of 
the  metropolitan  Joliet   area,    encompassing   four   townships  was 
160,960,    representing   64%   of   the  population  of   the   entire  county. 
Two  of   the   townships   in  the  metropolitan  area  registered   a  more 
than   30%   growth  rate  between   1960  and  1970. 

The  Will-Grundy  County  Medical   Society  has   176  member  phy- 
sicians  in   solo   and  group  practices   in  Will   County,    150  located 
in   the  metropolitan  Joliet  area.      The   area   is   served  by  two  general 
hospitals  with  a   total   of   983   beds   offering  physical   therapy,  in- 
tensive  care   and   cardiac   care,   psychiatric   care,    and  accredited 
schools  of  nursing,   medical   technology  and  radiologic  technology. 
Other  health   resources   include   twelve   long   term  care  institutions 
with  794   beds   and   91  dentists.      In  addition,    the  Will  County  Health 
Department,    headquartered   in  Joliet,    has  divisions  dealing  with 
mental,    dental   and   environmental   health,    health  education  and 
nursing   services.      A  variety  of   related   social   and  welfare  services 
is   provided  by   149   public   and  private   community  agencies   in  Will 
County . 

The   continued  pattern  of   rapid   growth   in  Will  County,  and 
particularly   in   the  metopolitan  Joliet   area,    have   taxed   the  capa- 
city of   existing  resources   to  meet  the   ever-increasing  demand  for 
health   services.      This   problem  is   intensified  by  a   steady  decline 
in   the   availability  of  primary  care  medical   services   since  1964. 


(65 


Approximately   53  physicians   left  private  practice   in  Will  County 
between    1964   and   1975,    4  6    in   the    categories   of    family  practice, 
pediatrics,    internal  medicine   and  obstetrics.      During   the  same 
period,    67  physicians   entered  practice  but  only   26   in   the  primary 
care,    some  part-time.      The   result  was   a   net   loss   of   22h  primary 
care  physicians   during  a  period  when   the  population  of   the  county 
increased  over   30%.      The   ratio  of  primary   care  physicians  to 
patients   in   the  metropolitan  Joliet   area   is   1/3,499,  however, 
physicians  do   not   restrict   their  practices   to   residents   of  that 
araa.      Most  residents   of  rural   areas   of  Will   County  are  dependent 
on  health  care   facilities   in   the  metropolitan  area,    thus   the  ratio 
of  primary  care  physicians   to   the  population  of   the   county  is 
1/6,045.    This   overload  has   caused  many  physicians   to   restrict  the 
size  of   their  practices.      These  restrictions   of  practices  resulted 
in  an  increase   of   crisis  oriented  delivery   in   local  hospital 
emergency  rooms  particularly   for   the   low  income   segment  of  the 
population . 

These  problems,    coupled  with  the   lack  of   education  of  the 
general   public   in  health  matters,    a   serious   transportation  in- 
adequacy  in  the  metropolitan  Joliet  area,    the   clustering  of  a 
majority  of   the  public   aid  recipients   of  Will  County   in  the  Joliet 
metropolitan  area   and  growing  physician  resentment  of   the  non- 
responsive  bureaucracy  of   the   Illinois  Department  of  Public  Aid, 
have   erected   significant  barriers   to   health  care.      These  barriers 
have   served  to  perpetuate   cycles   of   illness,    limited  health  aware- 
ness,   education  and  poverty,    particularly   frustrating  the  poor 
and  alienating   them   in   their   relationship   to   society.      It  is 
estimated  one  or  more   of   these  barriers   to   health  care  affects 
up   to   39%   of   the  population  of   the  Joliet  metropolitan  area. 

The   involvement  of   the  Society   in   the   EPSDT  Program  was 
an  attempt  to   isolate  and  resolve   some  of   these   barriers   to  health 
care  delivery,    however,    that   involvement  was   increasingly  tempered 
by   the  attitude  of   the  medical   community.    That  attitude,  hopeful 
in   the  beginning,    became   increasingly  discouraged  over   the  two 
years  of  the  project,   particularly  during  the   1975-76  contract 
period.      The   discouragement  was   fueled  by   the   shortage  of  primary 
care  physicians,    the  already  existing  patient  overload,    the  pre- 
viously described   difficulties    in   treating  public   aid  patients, 
and   frustration  with   the  public   aid   system  and   the  unresponsiveness 
of   the  State   of  Illinois   in  responding   to  physician  problems  and 
concerns.      Another   problem  contributed   to   the   steady   erosion  of 
physician   interest  and  participation   in   the  EPSDT  Program,  a 
generally   shared  belief   that   the  majority  of  malpractice  litigation, 
particularly  non-meritorious   suits  were   initiated  by  public  aid 
patients.    This   belief  was   only  a  part  of  a  much   larger  concern 
with   the   entire  malpractice  problem  as   experienced  by  physicians 
but   it   added   a   significant  piece    co   the   growing  mosaic   of  physician 


(7) 


It   is   not  unusual   that   the  Will-Grundy  County  Medical  Society 
should  choose   initially   to   become   involved   in   the   SPSDT  Program. 
The   recan-   history  of   the   Society  has  been  one   of   involvement  in 
the   creation  of   community  agencies   related   to   federal   health  pro- 
grams  and   community  problems.      Since   1969,    the   Society  has  initiated 
or  assisted   in  the   development  of  a  community  drug   abuse  program 
and   a   comprehensive   health  planning  agency.      The   Society  founded 
the   Quad   River  Foundation   for  Medical  Care,    the   only  operative 
Professional   Standards   Review  Organization   in   Illinois   in  1975. 
In   each   instance,    the   Society   committed  considerable  volunteer- 
physician   time   and  resources   as   well   as    financial   and   staff  support. 
In   each   instance,    the   Society  provided  office   space   to   the  fledgling 
organizations.      It  was  with  this   history  that   the   Society  accepted 
involvement   in   the  Early  Periodic   Screening  Diagnosis   and  Treatment 
Program.      Having  been   successful   in  previous   endeavors,    the  Society 
entered   the   1974-75   sub-contract  with  high   expectations.  Despite 
the   lack  of  progress   evident  at   the   end  of   that  period,    the  Society 
retained  enough  confidence   in   it's   ability   to  overcome  obstacles 
to  accept   a   second  contract   despite  advice   to   the   contrary  from 
the  AMA .   Even  when   severe   administrative  problems   had  surfaced 
after   signing  of   the   1975-76   contract,    the   confidence   of  physicians 
was   such  that,    followinga   site  visit,    Elsie   Tytla,   M.D.,  medical 
advisor   to   the  Medical   Services   Administration  of   the  Department 
of  Health,   Education  and  Welfare,   was  prompted   to  comment: 

"My  general   impression   is   that  this   is   an  unusual,  highly 
motivated,   activist  county  medical   society.      It   has   the  only 
designated  and  operational   PSRO   in   the   entire  State   of  Illinois. 
It  has   intense  desire   to  be   creative,    constructive   and  successful 
but   is  unable   to   overcome  a   series   of  unfortunate   events  over 
which  they  had   little  control."  2 


Elsie  Tytla,  M.D.,  Report  on  visit  with  Will-Grundy  County 
Society-September   23,    1975,    iatsd   September   30,  1975. 


(8) 


PHASING   INTO   SRS 500-75-0030 


The   "series   of  unfortunate   events"   described  by  Doctor 
Tytla  actually  began         develop  prior   to   initation  of   the  1975- 
76   contract.      As   reported   earlier,    the   staff   level  negotiations 
of   the   scope  of  work  of   the  contract  were   completed   in   a  brief 
period  of   time   and   the   substance  of   these   negotiations  were  not 
presented   to  physicians   of   the   Society.      Thus   the   contract  was 
encered  without  a   clear  understanding  of   its   terms.      Indeed  the 
committee  with  primary  responsibility   for   the  EPSDT  Program,  the 
Public  Health   and  Medical   Services   Committee,    had  voted  not  to 
recommend  a   second  contract   to   the   Society's   Board  of  Directors. 
The  Board  of  Directors   did   not  receive   that   recommendation,  in 
fact,    did  not  officially  consider   the   second  contract.      The  docu- 
ment was   approved   later  on  recommendation  of   the  Executive  Com- 
mittee.   An  ad-hoc  physician   committee  was   created,    by   staff,  to 
work  with  other  community  organizations   to   resolve  problems  en- 
countered  following  the   collapse   of   the  physician  rotation  program 
during  the   1974-75   contract.      This   ad-hoc   committee,    aware  of  only 
one  area  of  program  development,    represents   limited  physician 
contact   in  development  of   the   new  contract.      In   effect,    the  1975- 
76   contract  was  primarily  a   staff  document,    concieved,  written, 
finalized  and   signed  at   that   level.      The   respective   roles   of  the 
Society  and  the  Department  of  Health,    Education   and  Welfare  were 
not  defined  at  a  decision-making   level   in   the  Society.  Although 
the   new  proposal  mandated  development  of   a   sub-contract  with  the 
American  Medical   Association,    no   guidelines   were  provided  or 
developed  to   specify  the   role   of   the  AMA   in   the   project.  The 
roles   and  responsibilities  of   the  major  parties   to   the  contract 
would  not  become   clear   in   the   Society  until     several  months  had 
passed.      This   was   acknowledged  by  the   Department  of  Health, 
Education  and  Welfare  when  Doctor   Tytla  reported: 

"This  project   scope  of  work   is   way  beyond   the  capabilities 

of   this  Medical   Society  and   its   staff  at  this   time  who 

wrote  up   the  proposal   is   no   longer   there  is   a   good  project 

director  but   needs   help   in   the  health   care   delivery   field.  The 
active  physicians   are   all   practicing   specialists   who   honestly  want 

to   produce   something   useful   but   need  help  Mot  only   has  there 

been  no   cooperation   from  Welfare  but  no   response   to   any  suggestions 
in  Medichek  procedures   from  the   State   Health  Department  either. 
IN   ADDITION,    WE   AT    THE    CENTRAL   OFFICE    HAVE    NOT    RESPONDED    TO  ANY 
OF    THEIR   PLEAS . "  3 

Tytla,  M.D.,  Report  cn  visit  with  Will-Grundy  County  Medical 
y,    September    23,    1975;    dated   3 apt amber    30,  1975. 


*  9  ) 


By  September  1975,  it  was  claar  that  the  Department  of  Health, 
Education  and  Welfare  had  negotiated  the  contract  in  lass  than 
good  faith  in  rarms  of  the  technical  support  and  assistance  to 
the  Society   in  meeting  the   scope   of  work   in   the  contract. 


10) 


MAJOR   PROJECT  ACTIVITIES 


The  departure   of   key   staff  personnel   from   the  Society  and 
confusion  over  assignment  of  project  personnel   at   the  Department 
of   Health,   Education  and  Welfare  put   the  Society   in   a  position 
of   not  having  a  project  officer   at   a   crucial   time.      The  confusion 
in   staff   identity   at   Department  of  Health,    Education   and  Welfare 
persisted   from  July   to   November   1975.      With   new  personnel   at  both 
ends  of   the  project,    unacquainted  with   each  other   or  with  the 
nature   and  background  of   the  project,    the   Society  was   faced  with 
the   responsibility  of  defining   specific   areas   of  activity   to  meet 
the   scope  of  work  of   the   contract.      These   activities   were  broadly 
defined   into   three   general   areas  : 

A.  Discussions  with  state   and  national   leadership  relating  to 
specific  EPSDT  program  barriers. 

B .  Development  of   a  Community  Health  Services   Program  to  explore 
alternate  methods   of  delivery  of  health   care   to   the  Medicaid- 
eiigible  population   including  but  not   restricted   to  EPSDT- 
eligible  children. 

C.  Continuation  of  administrative   assistance   in   the   delivery  of 
EPSDT   services   in  private   office   settings   combined  with  develop- 
ment of  community   outreach  programs   and  patient-oriented  health 
education  materials. 

The   implementation  of   each  of   these  program  areas  has  been  charac- 
terized by  a   nearly   total  breakdown   in   communication  between  the 
Society  and  the  Department  of  Health,    Education   and  Welfare  leaving 
the  project  in  a  vacuum. 

The   single   exception   to   the   communications   breakdown  was  in 
the   relationship  of   the   Society  to   the  American  Medical  Association. 
Staff  members   from  the   Department  of   Rural   and  Community  Health 
assisted   local  project   staff   in  development  of   a   formal  sub-contract 
and  maintained  their   involvement   in,    and   concern   for   the  project. 
American  Medical   Association   staff  provided  virtually  the  only 
link   in  continuity  between  contract  periods.      Throughout   the   197  5- 
75   contract  period,    the  American  Medical  Association  proved   to  be 
the  only  reliable   source   of   technical   assistance   and  materials  for 
local   project   staff.      As    late   as   April,    1976,    project    staff  was 
verbally   informed  by   the   Department  of  Health,    Education  and  Welfare 
that  materials   were   available    to   assist    in  planning   and  decision 
making  but  the   information  was   never  forwarded. 

In   a  visit   to   the  Department  of   Health,    Education   and  Welfare 
shortly   after   initiation   of   the   1975-76   contract,    project  staff 


(115 


expenses  resulted  in  such  a  severe  cash  flow  shortage  that  the 
project  was  nearly  forced  into  suspension  in  three  months  when 
local   staff   could   no   longer  meet  expenses. 

To  resolve   this   difficulty   and   assist   in   implementing  the 
three  general   areas   of  activity  previously  mentioned,  physicians 
and  project   staff   designed  a  mechanism  of  quarterly  activities  with 
specific   goals   in   each   contract   quarter.      A  verbal   agreement  was 
obtained  with   the   Department  of   Health,    Education   and  Welfare  al- 
lowing  the   release   of  withheld   funds   at   the   end   of   each  quarterly 
period.      The   Society  was   not  assisted  by   the   Department  of  Health, 
Education   and  Welfare   in   this   re-evaluation.      As  was   the   case  through- 
out  the   contract,    the  Department   relied  on   sporadic   verbal  contact 
with  local  staff. 

In  November,    1975,    a  growing   frustration  on   the  part   of  the 
Society  was   expressed   in  a   letter   to   Mrs.    Beatrice   D.   Moore,  Acting 
Director,   EPSDT  Division,    Department  of  Health,    Education   and  Welfare 
from  the  president  of   the  Society: 

"We  would  make  only   four    (4)    requests   as   we   submit  these 
reports  : 

A.  That   someone   read   them   in  their   entirety   since   they  were  re- 
quested  in  precisely   this  form. 

B.  That   those  who   read   them  will   understand  that   they  were 
written   slowly,    carefully  and  sincerely. 

G.      That   the   authors,    approximately   fifteen    (15)    people,  really 
believe   that  Medichek   is   a   good   idea  and  with   changes  can 
live   and  grow,    but  without  changes   will   surely  die   a  horrible 
death . 

D.      That   someone    initiate   some   changes    seen   before   the  frustration 
level   of  Will   County  primary  care  physicians   exceeds  their 
patience  with   those  who   keep   encouraging   them  to   try  again." 

There  was   no   response   from  the  Department   of  Health,    Education  and 
Welfare . 

With  this   general   background   and   an  understanding  of   the  dif- 
ficulties which  attended   initiation  of   the   1975-76   contract,  we 
can   examine   the   operation  of   the  project. 


Albert  w.    Ray,   Jr.,   M.D.    letter   to  Mrs.   3eatrice  Moore,  dated 


(12) 


DISCUSSIONS  WITH  STATS  AND  NATIONAL  LEADERSHIP 
RELATING    TO    SPECIFIC    EPSDT    PROGRAM  BARRIERS 


One  of   the  major  barriers   to   delivery  of  EPSDT  services 
identified   in   the   1974-75   contract  was   the   participation  of  the 
Illinois   Department  of  Public  Health   and   the   Illinois  Department 
of  Public   Aid   in   the  program.      In   the   1975-75   project,    the  Society 
viewed  its   role  as   that  of   advocate   for   the   Department  of  Educ- 
ation and  Welfare   in  addressing  problems   of   inadequate  provider 
re-imbursement ,    lengthy  delays   in  provider   r e - imbur s ement ,  in- 
creasing  the   generally   low  priority  of  EPSDT   at   the   state  level 
and   the   simplification  or  removal   of  bureaucratic   paperwork  which 
hampered  delivery  of  EPSDT   services   in   the  private  medical  com- 
munity.     Several   specific   activites  were   initiated  to  address 
these  problems. 

A.  Discussions  with   the   Illinois   Department  of  Public  Health 
and   the   Illinois   State  Medical   Society   to   re-design  the 
EPSDT   reporting  form. 

B.  Testimony  before  the  Legislative  Advisory  Committee  on 

Public  Aid,    a   joint   committee  of   the   Illinois   General  Assembly. 

C.  Development  of   an   internal   system  of  prior  claim  review 

and   training  of  office  personnel   for  patricipating  physician 
members   of   the  Society. 


Discussions   with   IDPH   and  ISMS 


It  was   assumed   that  revision  of   the  EPSDT  claim  form  would  be 
relatively   simple.      In  September,    1975,    project   staff  met  with 
representatives   of   the   Illinois   Department   of   Public  Health, 
Illinois   Department  of  Public  Aid  and   the  Committee  on  Govern- 
mental Health  Program  Reimbursement  of   the   Illinois   State  Medical 
Society.      The  meeting  was   the   first  between   the   Society,    the  two 
state  code  departments   and  the   State  Medical   Society   to  discuss 
specific   revisions   since   the   involvement  of   the   Society  in  April 
1974.      A   series   of  eleven    (11)    specific  program  recommendations 
were   submitted  by  project   staff   and  physicians   and   the  Illinois 
State  Medical   Society   to   representatives   of   the   two   state  depart- 
ments.     The  recommendations  were: 

A.      M-M-R-     Vaccine   to  be   included  within  Program  extending  to 
age   10  with  provisions  made   to  update   children  who  have  not 
been   immunized  against  mumps. 

3.      Incortor ation  of   newborn   examination   into   the  Medichek 
3  2 3? fi a 1 3  ncr  ^rccr^ram. 

C.      Closer   coordination  of  Medichek  with   IDPA  diagnosis   and  treat- 
ment components. 


(13) 


D.      Make  provisions  within  program   to   allow  private  provider  to 
be   aware   of  vision  and  hearing   results   on  patients. 

S.      Need   for   greater   coordination  of  outreach  and  education 
throughout   the  state. 

F.  Consideration  of   including  a   learning   disability  screening 
test  within   the  Program  allowing  payment   to  providers .  Ident- 
ification of   referral   sources   for   foiiow-up  must   be  identified 
and   the   adequacy  of   those  referral   sources   to   absorb  children 
identified   through  screening. 

G.  If   newborn   examination   included   in   screening  package   and  budget 
requires   the   exclusion  of  other   examinations,    the  following 
changes  were  recommended;    drop   eighteen  month  visit,  combine 
three   and   four  year,    combine   five   and   six,    coordinate   ten  and 
fourteen  with   required   fifth   and  ninth  grade   exams   and  combine 
seventeen- twenty . 

H.  Developmental   appraisal   reporting   should  be   changed  to  allow 
for  the  report  by   the  physician  and  also   should  allow  the 
physician   to  administer   a   specific   test  of  his   choice  and 
report  the  results   of  his  test. 

I.  Urinalysis-allow  physician  to   run  a   routine  urinalysis   and  pro- 
vide payment   for   the  procedure,    and  have   the  dipstick  urine 
test  be  made  part  of   the  routine   exam  without  payment  provided. 

J.      There   is   concern  as   to   the  over-immunization  problem  on 

children  and   there   is   a   need   to   provide   local   feedback  to 
physicians   on   immunization   status   of   children  . 

K.      Claim  form  revision-consider  possiblity  of  devising   a  billing 
form   suitable   to   IDPA  and  Medichek   reporting   requirements  and 
set   the   form  up   in  a   similar   format   such  as   the  AMA  Health 
Insurance  Claim  Form  which  all  physician  offices   are  familiar 
with.  5 

Representative   of   the    Illinois   Department   of   Public   Health  and 
Illinois  Department  of  Public   Aid  were   not   authorized   to  make  com- 
mitments  to   basic   program  changes   and   indicated   that   ediroriai  re- 
vision of   the   claim   form,    as   requested   in  point   11,    would  take 
approximately   six  months. 


Will-Grundy  County  Medical  Society  SRS  Project-Monthly  Project 
Report,    September,  1975. 


(14) 


Although  consideration  of.    and   further  discussion  on,    either  points 
was  promised,    there  were   no   further  meetings   on   those   topics.  In 
February,    1976,    the   revised  claim   form  was   reviewed  by  project 
staff  and   the  Committee  on  Governmental   Health  Program  Reimburse- 
ment of   the   Illinois   State   Medical   Society  and   a   representative  of 
the   Illinois   Department  of  Public  Health.      Although   several  ad- 
ditional  specific   editorial   changes   in   the   claim   form  were  suggested, 
the  overall   reaction  was   later   summarized  by   the   Illinois  State 
Medical  Society: 

"Overall,    the  physicians   felt   that   the   changes   in   the  form 
would  have   little   effect  upon   the  major  problems   in   the  Medichek 
(EPSBT)    Program.      The   form   is   long,    difficult  to   use   and  understand 
though   it   is   considered  better   than  the  previous   one."  ° 

There  were  no  further  discussions  or  communications  with  the  Illinois 
Department  of  Public  Health  on  this   relatively   simple  matter. 

Separate  discussions  were   initiated  with   staff  members   of  the 
Illinois  Department  of  Public  Aid   in  an  attempt   to   further  clarify 
private  provider   concerns  with   state  administration  of   the  EPSDT 
Program  and  to   discuss   those  concerns   through  the   local  project. 
It   is   important  to  remember   that   the   Society   had  been  attempting  to 
begin  discussions   of  this   nature   since   the  beginning  of   its  in- 
volvement  in  the   EPSDT  Program   in   1974.      It  was   felt   the  discus- 
sions were  necessary   in  order   to   relate   the   local  project   to  the 
state  program.      The   Society  also   believed   it  was   fulfilling   its  role 
as   advocate   for  the  Department  of  Health,    Education  and  Welfare  by 
opening  detailed  discussions  with   the   Illinois   Department  of  Public 
Aid  . 

What   follows   is   a   summary  of  major  provider   concerns   and  staff 
responses   from  the   Illinois   Department  of  Public   Aid   from  a  meet- 
ing  in   October  1975: 

A.      We  questioned   the  nature  of   the   responsibilites   of  a   new  Pro- 
vider  Relations   Unit   in   the   Illinois   Department  of  Public  Aid 
and  asked  about  coordination  between   the   new  Unit  and   the  EPSDT- 
Medichek  Program  of   the   Illinois   Department   of  Public  Health. 

State   staff   responded   that   the   new  Provider   Relations   Unit  would 
assume   responsibility   for  provider   enrollment   in   the  Medicaid  pro- 
gram and  would  provide   provider   education   for   state   vendors.  Under 
the   educational   component,   we  were   told  that   state   staff  would  be 
made  available   to   private  offices,   on   request,    to   assist   in  proper 
claim  form  preparation  and   systems  operation. 

°Larry   3.    Bcress,    Illinois   State   Medical   Society,    letter  to 


(15) 


In  addition,    the  Unit  was  assigned  the  development  of  a  monthly 
newsletter   to  providers   detailing  Medicaid  program  changes  and 
providing   status   reports   on  development   of   the  Medical  Management 
Information  System.    Mo   direct   relationship  between   the  Provider 
Relations   Unit  and   the  EPSDT/Medichek  Program  was   detailed.  Al- 
though  sporadic   copies   of   the  monthly   newsletter  were  received 
during  the  balance  of   the   contract  period,    no  other   evidence  of 
the  operation  of   the   Unit  was  provided   to   local  project  staff. 

3.      We   inquired  about  EPSDT  activities      in   other   areas   of   the  state 
and  requested   information   to   contact   the   operators   of  other 
local  projects   with   the   goal   of   exchanging   information  on 
successful  project  activities. 

State   staff  verbally  provided   information  on   the  operation  of  EPSDT 
projects   by   several   county  health  departments   in  other   areas  of 
Illinois   and  promised   follow-up   information  which  was   never  received. 

C.  We   asked  about   long  range  plans   to   identify  Medichek-eligible 
children  not  presently  receiving   services   and  about  plans  to 
intensify  outreach   efforts   to  draw  them   into   the  program. 

IDPA   staff  indicated   that   the  Medical  Management   Information  System 
might  develop   the   capability   to   identify  EPSDT-eligibles   not  re- 
ceiving services  but   said  the  Department  would  not   solicit  medical 
visits.      State   staff   expressed   the  belief   that  outreach  would  not 
be   intensified  because  of   the   fiscal   crisis   faced  by   the   State  of 
Illiinois   in   the  Medicaid  program.      This   statement   served   to  con- 
firm the  Society's   impression  that   the   EPSDT  program   suffered  a 
low  priority   at  a   state   level   and  would   continue   to   do   so.      Since  a 
basic   tenent   of  EPSDT   is   to   locate   eligible   children   and  enroll  them 
in   a   continuing  program  of   screening,    and   since   an  active  outreach 
component   is   necessary   to   locate   eligibles   and   to   keep   them  enrol- 
led,   the  reluctance  by   the   Illinois   Department  of  Public  Aid  to 
conduct  active  outreach   for  economic   reasons   casts   a   negative  re- 
flection on   the  probability  of  program  success. 

D.  Since   the   Society  was   concerned  about   the  use  of  EPSDT  educational 
materials   and  wished   to   explore   the  possibility  of  coordinating 
the   development  of  patient-oriented   educational  materials  through 
the   local   project  with   state   activities,   we   inquired  about 
materials  currently   available    to   public   aid   staff   at   the  county 
level . 

We   were   informed  that   the   development  of   educational  materials  on 
EPSDT   had   been    limited   to   a   handout   pamphlet   and   a   packet  designed 
for  use  by  professionals   and  related   service  workers   outlining  the 


(16) 


provisions   and  administrative   structure  of   the  EPSDT/Medichek 
program.      An   annual  mass  mailing  of   the   handout  pamphlet   is  the 
chief  means   of  distribution  of   information   to  public   aid  recipients. 
State   staff   also   outlined  plans   for  development  of  educational 
programs   for   county   level   staff   and  development   of   a  pamphlet  for 
the  mothers   of  newborns.      We  did   not   learn   if   this   activity  was 
completed.      The  development  of   educational  materials   for   the  mothers 
of   newborns   is   of  questionable  value   since   the   State   of  Illinois 
does   not   include   newborns   in   the  EPSDT/Medichek  program. 

E.  With  patient  transportation   remaining  as   a  major  barrier   to  the 
delivery   of  SPSDT   services,    we    inquired   about    the   policy   of  the 
Illinois   Department   of  Public  Aid   regarding   transportation  al- 
lowances  for  medical  care. 

State   staff   responded   that  medical   care   transportation  was  generally 
provided  to  recipients   as  follows: 

1.  Vendor  payment   to   a   company,    private   taxi   or  public  mass 
transit,    for  example,    is   available  but  requires  prior  ap- 
proval  and   a  company   agreement  before  delivery  of  the 
transportation  service. 

2.  Mileage  r e- imbursement  at   a  pre-arranged  rate  with  a 
volunteer.      This  method   requires   a   considerable   amount  of 
time,    state   staff   indicated   sometimes   in  excess   of   two  months. 

It  was   indicated  that  medical   care   transportation  allowances  were 
restricted  when  the   State  of   Illinois   implemented   a   flat  grant  pay- 
ment  system  replacing   a  need   item  payment   system.      It   is  apparent, 
from  the   information  provided,    that  medical   care   transportation  is 
difficult   for  recipients   to  obtain,    again  causing  a   negative  im- 
pact on   the  delivery  of  EPSDT   services  with   its  mandated  schedule 
of  medical  visits. 

F.  In  an  attempt   to   further   explore   the   administrative  commitment 
to  EPSDT  at  a   state   level,    a   series   of  general  questions  were 
posed  relating   to   the  amount  of   informational   exchanges  among 
county   level   EPSDT/Medichek   coordinators,    the    future   of  un- 
filled  staff  positions   in   the   EPSDT/Medichek  program   and  the 
duties   of   county   level  coordinators. 

State   staff   responded   that   there   was   not  a   regular  program  of 
meetings    for   county   level    staff      to   discuss   program  problems  and 
successes   and  that   no   state-wide  meetings   for   county   level  staff 
had  been   conducted   to   discuss   program   changes    since    early   in  1975. 


(17) 


It  was   felt   that  due   to   fiscal   limitations,    several   vacant  adminis- 
trative positions    in   the   Medichek  program   in   the   Illinois  Depart- 
ment of  Public  Health  would   not  be   filled.      It   was  acknowledged 
that  Medichek  coordinators   at   a   county   level   were   salaried  through 
the   75/25   federal  matching   formula  provided   through   federal  EPSDT 
regulations  although  activities   of   these  workers  were  considered 
part  of   service   activity  and  most  were   assigned  other  duties   as  well. 
This  was   particularly   important   to   local   project   staff   since  a 
major   local   problem  was   the   lack  of   a   Medichek   coordinator   in  the 
county  public   aid  office. 

G.      We  asked  about   the   involvement  of  other   governmental   or  private 
agencies   in   the  EPSDT/Medichek  program  other   than  the  Legis- 
lative Advisory  Committee   on  Public   Aid  of   the   Illinois  General 
Assembly . 

State   staff   indicated   that  no  other  governmental   agencies   or  commit- 
tees  and  no   other  private   agencies   or   organiztions  were  actively 
involved   in  the  EPSDT  program.      There  was   an   indication  that  a 
welfare   rights   group  had   filed   suit  against   the   State  of  Illinois 
for   failure   to   implement  EPSDT  early   in   the   development  of   the  pro- 
gram,  but   state   staff  was  unable   to   report  on  the   outcome   of  the 
suit . 


H.      General   inquiries   were  posed  relative   to   the   state  of  the 

relationship  between   the   State  of   Illinois   and  the  Department 
of  Health,    Education  and  Welfare   concerning  development  of  the 
EPSDT  program.      We   specifically   inquired   about   the   state  re- 
sponse  to   the  publication  of  proposed  penalty  regulations. 


State  staff  declined  to  discuss  these  questions  with  local  project 
staff  without  written  authorizations  from  the  Director  of  the  De- 
partment. We  were  informed  that  the  Director  has  responded  to  the 
publication  of  proposed  penalty  regulations  but  since  the  response 
was  over  his  personal  signature,  state  staff  declined  to  discuss 
the  nature  of  the  response  without  the  Director's  personal  author- 
ization. 


As   the   summary   illustrates,   many   areas   of  discussion  were 
opened  however   there  was   no   follow-up   to   these   initial  discussions 
by   the   Illinois   Department  c:   Public   Aid.      It   should   also  be 
noted  that   IDPA   staff   reviewed  and  approved   a   draft  of   the  report 
of    the   discussion   prior    to    its    inclusion   in   the   October   1975  monthly 
progress   report  of   the   local   project   to   the   Department  of  Health, 
Education   and  Welfare.      Local    staff   reaction   to    the  exploratory 
discussion   was    also  reported: 


(13) 


"As   a  result  of   the   IDPA  meeting,    project   staff  became  more 
aware   of   the   reality  of   the   financial   limitations   currently  being 
on   the   Department   of   Public   Aid   in   the   State  of   Illinois.  The 
Governor  has  ordered   6%   cuts   in  all   State  Departments   and   in  ad- 
dition,   fifty  million  dollars  was   withheld   from   the  Public  Aid 
appropriation   for   fiscal   1976.      These   cuts,    in   addition   to  the 
imposition  of   a   statewide   freeze   in  hiring   new  employees  signif- 
icantly affects   and   limits   Illinois'    ability   to   implement   a  mean- 
ingfull   and   effective  EPSDT  Program.      In   addition,    I   question  the 
Departments'    ability  to  provide   the   services   required  by   law  to 
categorically   eligible  persons   in   the   State.      Vacant  desks  were 
evident    in   Springfield   offices   and   Will   County   in   particular  is 
understaffed  with  approximately   3-6  uncovered  caseloads   of  approx- 
imately  180   cases   each  affecting  approximately   540   to   1080  people. 
This  means   locally,    eligible   families   are   not  being   afforded  the 
services   and   attention  required  by   law,    and  at   the  administrative 
level   in  Springfield  position  vacancies  prevent   efficient  manage- 
ment of  Department  functions. 

It   is  within   these   limitations   that  the  Department  of  Public 
Aid   is   implementing  EPSDT   in   Illinois.      Budget  cuts   have  been  in 
most   every  medical  assistance  program  including   the  drug  program, 
physician   services,    long   term  care  programs,    hospital  payment  pro- 
grams,   etc.      Only   two  medical   programs   sponsored   through  the  De- 
partment of  Public  Aid  were   left   unscathed.      Family  Planning  and 
Medichek.      This  action,    as   token  as   it  may  be,    appears   to   be  the 
singly,   most   significant   step   the   Department  has  made   in  implement- 
ing EPSDT.    The   fact   that  they  did  not   lump  Medichek  with   the  rest 
of   the  medical  programs   is   a  hopeful   sign   that   someone  recognizes 
the   importance   of   the  Program  and   its   apparent   effect  on  AFSC  federal 
matching  funds. 

Project   staff  attempted   to  point  out   the   apparent  weakness   of  the 
program  as  perceived   locally   in   the  questions   asked,    but  more  im- 
portantly attempted   to   show  the  willingness   of  project   staff   to  work 
for   a  more  effective,   meaningful   and   successful   program  of  EPSDT 
in   Illinois.      Earlier   in   the   contract   at  the   IDPH,    IDPA  and  ISMS 
meeting,    staff  gladly  volunteered  project   time   to   serve   on   any  com- 
mittee  or   task   force  appointed   to  work   in   the   area  of  EPSDT. 
This  offer  was  made   again  to   IDPA   staff   including   the   Public  In- 
formation Office,    Medichek  Supervisor   and   the   Acting  Chief  Bureau 
of  Medical   Services.      It   appears   however,    that   the   enthusiasm  for 
program   improvement   by   project   staff    is   not   shared   by   the  responsible 
authorities   in  Springfield.      Unfortunately,    it   appears   that  Illinois 
will   continue   to   slide   by  with   the   EPSDT  Program  until    such  time 
the   Department  of   Health,    Education   and  Welfare   exercises  its 


(19) 


authority  by   imposing   the   1%   penalty   for   failure   to   implement  the 
program . " ' 

In   a   future   attempt   to   broaden  communication   at   a   state  level 
and  as   a   result  of   information  gathered   in   staff   level  discussion 
with   the   Illinois   Department  of  Public  Aid,    local  project  staff 
prepared  a  report   on   the   involvement  of   the   Society   in  EPSDT  for 
presentation   to   the   Legislative  Advisory  Committee  on  Public  Aid 
in  November   1975.      The   Committee   is   a  bi-partisan   joint  Senate  House 
watchdog   committee   of   the   Illinois   General   Assembly  which   has  been 
successful   in   introducting   some   reforms   in   the  public   aid   system  in 
Illinois.      The  report,   delivered  by  Albert  W.    Ray,    Jr.,  M.D., 
president  of  the   Society,    summarized  a  number   of  problem  areas  in 
the  EPSDT/Medichek  program: 


A.  Medichek  program  given   low  priority  by   state  and   local  depart- 
ments of  public   aid   and  public  health. 

B.  Difficulty   in   reaching   the  Medichek-eligible   child-the  prob- 
lem of  confidentiality. 

C.  Strong   identity  with   Illinois   Department  of   Public  Aid  hinders 
program  acceptance  by  physicians. 

D.  Medichek   is  adminis tratively-not   service  delivery-oriented. 

E.  Failure   to  develop  patient-oriented   educational  materials. 

F.  Failure   to  provide   for  diagnosis   and  treatment  of  develop- 
mental disabilities. 


G.  Inadequate   staffing  at  Will   County  Department  of  Public  Aid. 

H.  Inadequate  knowledge  of   abnormal   r eports-direc tly  related  to 
the  problem  of  confidentiality.  8 


The   testimony  also   summarized   special   local  problems   and  pointed 
out   the   Society's   difficulty   in  dealing  with   the   Illinois  Depart- 
ment of  Public   Aid   and    Illinois   Department   of   Public   Health  since 
1974.      A   list  of   eight   specific   recommendations   was   also  presented 

A.  Newborns  must  be   covered  under   the  Medichek  program. 

B.  Medichek   reporting   forms  must  be  reviewed. 


7 


Will-Grundy  County  Medical   Socety,    SRS   Project,    Monthly  Progress 


>  c  t  o  b  e  r  1375. 


^Raccr-   of  the  Will-Grundy  County  Medical   Society  on  EPSDT/Medichek 
Program   for   the   Legislative  Advisory  Committee   on  Public  Aid, 
November    17,  1975. 


(20) 


C.  A  mechanism  must  be  devised  whereby  Medichek-eligible  patients 
can  be   identified   and   included   in   the  program  without  violating 
confidentiality. 

D.  Staffing  of  public   aid  offices   at  both   local   and   state  levels 
must  be   augmented  to  cope  with  the  project.      This  might  include 
an  EPSDT  coordinator. 

S.      Active  outreach  programs  must  be   instituted  by   lecal  public  aid 
departments . 

?.      Must  develop   and   effectively  distribute   consumer-oriented  health 
education  materials   to   emphasise   the   importance   of  preventive 
care  . 

G.  Utilize   centralized  facilities,    schools   if  necessary,  for 
screening  purposes. 

H.  Provide   for  automatic   replacement  of   vaccine   administered  to 
Medichek  patients.  ' 

It  was   the   intent   of  this  presentation   to   enlist   the   support  of  the 
Legislative   Advisory   Committee  on  Public  Aid   in  opening  communi- 
cation with  the   two   state   departments   at  a  decision-making  level. 
We  were   advised   to   anticipate   further  contact   from  the   Committee  in 
January,    1976,   after  Committee   staff  had  reviewed  our  presentation 
but  there  was   no   follow-up   and  no   further   contact  with   the  Committee. 

The   Society   also   had  little   success   in   communicating  with  the 
Will   County  Department  of   Public  Aid.      The   local   office  suffered 
a  severe   shortage  of  personnel   from  August   1975   through  February 
1976   as   a   result  of   a   statewide  moratorium  on  hiring  instituted 
by  the   Governor.      In   addition,    the   local   supervisor  was  transferred 
in   November   1975   and  was   not  replaced  until   January   1976.  Attempts 
to  reopen  communication   following  the   appointment  of   a  new  super- 
visor also   failed.      In  January   1976,   project   staff,    Doctor   Ray  and 
a   state   representative  met  with  the   new   supervisor   to  introduce 
the   Society's  project,    to   discuss   the  possibility  of   the  transfer 
of  project  records   to   the   local  office   following  termination  of 
the   contract   and   the   development  of   a  mechanism  to   allow  the  local 
office   to   continue   the   services   of  prior   claim  review   and  foilcw- 
up  being  provided  the  medical   community  through  the  project  office. 
Although  an  offer   to   use  project   staff   to  provide   EPSDT  training 
for  new  public   aid   employees   was   accepted,    there  was   no  response 
to   our  other  overtures. 


The  Society's   growing   sense   of   futility   in   gaining   input   at  a 
state  or   local   level  was   compounded  by  what  was   percieved  locally 
as   a   lack  of   supportive   involvement  by   the   Department  of  Health, 
Education  and  Welfare.      From  July,    1975,    until   January,    1976,  it 
was  our   impression   that   the   Department  would   initiate   a   review  of 
the   Illinois   EPSDT  program   to  determine   if   the   State   of  Illinois 
was   out   of  compliance  with  basic  program  regulations.      It  was 
further  our  belief   that   some  of   the   documented   lack  of  responsive- 
ness  on   the  part   of   the   State   to   this  project  would  be  considered 
in   that   review.      Accordingly,    the  Society   commented   on   the  proposed 
penalty   regulations   as  published   in  the  Federal   Register,  Volume 
40,    N . ,    162,    dated  August   20,  1975: 

"The   delivery   of  EPSDT   services   is   not,    and   should  not,   be  a 
yes  or   no,    accept  or   refuse  proposition.      Rather,    these  services 
should  be   an   educational  process   of  helping  people  understand  that 
regular  medical   and  dental   care,    in  combination  with  healthful 
eating  habits   and  moderate  physical   activity  provide  ingredients 
necessary   to   insure  good  health. 

"Public   aid  recipients   are  already   innundated  with   reams  of 
papers   requiring   signatures   for   such   things   as  medical  information, 
insurance   information,   verification  of   school   attendance   and  agre- 
ements  to   cooperate   in   support   enforcement   activites   to  name  a  few. 
It   is  our   considered  opinion  that  requiring  an  additonal  signature 
for   the  purpose  of   accepting  or   refusing  EPSDT   services   is   not  the 
most   effective  means  by  which  to   inform  recipients   of   these  services. 

"We   believe   a    federally-supported  program,    with    funds  specified 
for   employment  of   individuals   to  provide  outreach  and  follow-up 
services   and   supportive   health   education   is   a  more  beneficial  and 
effective  means   of   informing  Medicaid-eligible   families   of  EPSDT 
services.      It   is   further  our  opinion   that  additional  complication 
of  a  physician's   office   routine  by   requiring   another   form  docum- 
enting diagnosis   and  treatment  will   antagonize   the  medical  com- 
munity and  will   result   in  decreased  participation  by   the  very 
people  needed   to   insure   finding' and   treating  all  problems  ident- 
ified in   screening."  10 

Our   interest   in   and   anticipation  of   a   review  of   the  Illinois 
program  was   also   confirmed   a:   a   staff  level: 


Albert  W.    Ray,    Jr.,    M.D.    letter   to  Administrator,    Social   and  Re- 

habilition  Service,  Department  of  Health,  Education  and  Welfare, 
da~sd   September   18,  1375. 


"As  we  understand   the   situatxon . . . . the   state  must   submit  a 
program   improvement   plan  by  October   30,    1975   and   a  penalty  decision 
will   rest  on   that  plan. 

"The  central   office  position   in   this  matter   is   important  to 
this  Medical   Society   since  we  have  begun   to  develop  documentation 
on   the  problems   of   the  Medichek  program   for  possible  presentation 
to   a   legislative   sub-committee  which  oversees   the  operation  of 
IDPA.      We  were   concerned   that   this  presentation  would  be  pointless 
if   the   Department   of  Health,    Education  and  Welfare   felt   the  state 
was   not  out  of   compliance."  " 

At   the   local   level,    the  belief  persists   that  only  direct  inter- 
vention by  the   Department  of  Health,   Education  and  Welfare  can 
increase   the  priority   given   EPSDT  by   the  State   of   Illinois.  This 
belief  was   first   expressed   in   correspondence   to  project   staff  at 
the   Department  of  Health,    Education  and  Welfare   in  October  1975: 

"Pursuant   to   our  telephone  conversation  of  October   7,  1975, 
we   agree  with  your  assessment     that   the   State  of   Illinois   will  be 
of   small   assistance   in   the   local   level   implementation  of   the  EPSDT 
program...      The  State  of   Illinois   has   provided  very   little  assist- 
ance  to   this  project  and  we  have   little   reason   to   expect   a  change 
in   the  position.      We  will   not  be   a   factor   in  any  decisions  de- 
claring  Ilinois   to  be  out  of   compliance  but  we   are   concerned  that 
some   of  our   communication  difficulties  with  your  office   has  been 
caused  by   a  preoccupation  with  implementing   a  penalty  on   the  State. 
This  preoccupation  has   existed   in  both   the   Central   and  Regional 
office  .  " 

"The   failure  of   the  State   of   Illinois   to  provide  meaningful 
assistance   in   the   implementation  of  EPSDT   can  be  directly  traced 
to   the  very   low  priority  placed  on   the  program  in   the  Department 
of   Public  Aid  and   the  Department  of  Public  Health.      You  will  note 
in  our  September  progress  report   that  we  participated   in  a  staff 
level  meeting  with  representatives   of  both  departments   and  that 
it  was   the   first  meeting  of   this   type   since  our   involvement  in 
April  of   1974.      We   feel   some  progress  was  made   in   that  meeting  but 
it   failed   to   address   the  greatest  weakness   in   the   system,  i.e., 
that  EPSDT   in   Illinois   is   not   service   delivery  oriented." 


Ronald  R.  Bryant,  letter  to  Phillip  Otto,  Department  of  Health, 
Education   and  Welfare,    dated  Octer    23,  1975. 


"We   are  confirming  by   -his   letter  that  our  contact  with  the 
Region  7  office  has   been  very   sporadic,    and   again  we   will   offer  to 
be'a  resource   in   further  dealings   with  the   Stace   of   Illinois."  12 

Although   local  project   staff  was   unaware,    these   views  were 
receiving   independent  and  official  confirmation: 

"Due   to   the   reorganization  of  the   state   agency   and  turnover 
in  State  staff    (three  Sta-e   agency  Medichek  Coordinators 

since  March,   1974)    the  Stare  has   encountered  considerable  diff- 
iculty in  establishing  a  high  priority  program  and  developing 
procedures    to   assure   effective   reportable   county  implementation. 
The   State's   Medichek  program  is   not   effectively  operationalized  at 
the  county  level   for  this  reason." 

"The  major  weakness   in  the   State's   Program  relate   to  its 
difficulty   in  obtaining  and   submitting  reports  on   the   number  of 
children  who   receive   complete   screening  examinations;    the   lack  of 
a  State   computerized  tracking   system;    the   failure   of   local  offices 
to  document  requests   for   screening  or  the   assistance  provided 
clients   in  obtaining  this   or  diagnosis   and  treatment  within  a 
specified  time   frame   as   required  by   regulation;    and,    the  States' 
inability   to  mandate  program  participation  and  uniform  reporting 
for  private  practitioners   and   the  voluntary   clinics   per  visit 
rates."  13 

Local  project  opinion  was   then   directly  considered: 

"We  have  reviewed  the   letter   submitted  by  Mr.    3ryant  and 
regret   the  delay  in  replying.     We  agree  with  Mr.    Bryant's  opinion 
the  Department  of  Public  Aid  has  not  evidenced  sufficient  interest 
in   this  project  or  established   the   working   relationship  necessary 
for   its   finding   to  have   impact   on   the   State's  program  operation. 
This   has   been  discussed  with   the   State   EPSDT  Coordinator  who  re- 
ported that  the  major  problems   stemmed   from  two  factors; 
1.      limitation  of   staff   at   state   level   and,    2.      problems  with  the 
administration  of   the  public   assistance  program  in  Will  County. 
Because   of   the   latter  problem  the  previous   county  superintendent 
has  been  removed." 


"We   likewise   concur  with   the   observation   that   the  Medichek 
program   in  Illinois   has   not  been   handled   as   a  priority  program. 
Until   this   is   changed,    we   share  Mr.    Bryant's  pessimism  about  the 
possible   accomplishments   of   the  project   in   assisting   the   State  to 
develop   effective   implementation  of  a  meaningful   EPS DT  program  in 
Illinois.      We  believe   that  our  Quarterly  EPSDT  Penalty  Reports  and 
recent  Program  Analysis   Report   substantiate   this  fact." 

"Mr.   Bryant   is   also   correct   in  his   statements   regarding  the 
sporadic   contacts   between  project   staff   and   the   Regional  Office 
and   the   fact   that   HEW  emphasis   has  been  on  monitoring  penalty 
compliance.      We   have   tried,    however,    to  maintain  open   lines  of 
communication  with  the  Will-Grundy  project.      However,    due   to  other 
work  pressures   and   changes   in  assignments  within  Medical  Services, 
we   have   been  unable   to  work  as   closely  with  the  project  and  the 
State  agency  as  desired,    necessary  and  originally  planned.  Hope- 
fully,this   can  be   accomplished   in   the   near   future."  I4 

It   should  be   noted   that   these   communications   reached   the  local 
project   indirectly  and   several  months   after    transmittal     The  direct 
contact  between   the   Region  V  office   and   the   local  project  never 
material i  z  ed . 

The   locally  perceived  apathy  to   the  development  of  EPSDT  on 
the   local   level  on   the  part  of   the  State  of   Illinois   and  the 
Department  of  Health,    Education  and  Welfare  was   again  summarized 
at  the   conclusion  of  meetings   regarding  revision  of   the  Medichek 
claim  form,    as  described  earlier: 

"As  we   near   the   completion  of   two   years   of   attempting   to  im- 
plement  the  delivery  of  Medichek   services   in  private   office  settings 
we   are   forced   to   the  obvious   conclusion   that   neither   the  Illinois 
Department  of  Public  Health  nor   the   Department  of  Public   Aid  have 
any  real   interest   in  Medichek  or   in  working   cooperatively  with  the 
medical   community.      Major  problems   in   the   Medichek  program,  ident- 
ified  initially   in   1974,    remain  unchanged.      It   is   our  opinion  that 
these  problems  will   remain  unchanged  until   a  more  powerful  entity 
than  organized  medicine   forces   a   change."  15 


Clyde  V.  Downing,  Memorandum  to  Dr.  Keith  Weikel ,  Commissioner, 
Medical   Services   Administration,    dated  December   16,  1975. 

Ronald  Bryant,    letter    to   Larry   Boress,    Illinois    State  Medical 
Society,    dated   Atril    21,  1976. 


(2  5) 


The   lack  of   response   to   this   project  by   the   Illinois  Depart- 
ment of  Public   Aid   and   Illinois   Department  of   Public  Health  is 
not   surprising  when  viewed  against   the   climate   surrounding   the  public 
aid   system  during   the   contract  year.      The   entire  public   aid  program 
has  been   embroiled   in  controversy   since   the   onset  of   the  local 
project   in  July,    1975.      The   Medicaid  program   in  particular   has  been 
repeatedly  wracked  by   scandal   centering  on  program  abuses  by 
various   categories   of  providers.      The   United  States   Attorney  in 
Chicago   has  publicly  referred   to  Medicaid   abuses   as   one  of   the  most 
serious   law  enforcement  problems   faced  by   his  office.  Concurrent 
state   and   federal   investigations   of   the  Medicaid  program  are 
continuing . 

An   attitude  of  def ensiveness   and  mistrust  on   the  parts   of  state 
officials   and  providers,    engendered  by  the   continuing  investigations 
and  public   reaction   to   them,    has   been   further  aggravated  by  a  de- 
teriorating relationship  between   the   Illinois   Department  of  Public 
Aid  and  the   Illinois   State  Medical  Society.      The  decline   in  this 
relationship  was   heightened   following   testimony  by  the  president 
of   the   Illinois   State  Medical   Society   to   the   Legislative  Advisory 
Committee  on  Public   Aid   in  October  1975: 

"In  the  past,    the   Illinois   State  Medical   Society  strongly 
encouraged  its  members   to  participate   in   this  program.      As   a  result 
more   than   3,000  physicians   are   now  treating  Medicaid   patients  in 
Illinois.      However ....  in  view  of   IDPA's   recent   irresponsible  ad- 
ministrative  directives   and  proposed   cuts   in  reimbursement  levels 
....we   cannot   in   good   conscience   continue   to   urge  participation. 

"Perhaps   the  only   solution   is   to   remove   administration  of 
Medicaid   from  the   Illinois   Department  of  Public   Aid   and  place  it 
in   an  area  where   it   can  be   administered  responsibly ....  and  with 
emphasis   on  the  quality  of  care." 

"The   Illinois  State  Medical   Society  acknowledges   that  re- 
sponsibility  for  assuring  quality  care   under  Medicaid   is  shared 
by   government  and   the  medical  pro f e s s ion . . . . al 1   we   ask   is   that  we 
be  given   the  opportunity   to   share   in   that  responsibility." 


°J.    M.    Ingalls,    M.D.,    President,    Illinois   State   Medical  Society, 
testimony   to   the   Legislative  Advisory  Committee   on  Public  Aid, 
October   16,  1975. 


(26) 


These   statements   were   followed,    in   November,    1975,   by   approval  of 
a   resolution  by  the  House   of   Delegates   of   the   Illinois  State 
Medical   Society,    reading   in  part; 

"RESOLVED,    that   the   Illinois   State  Medical   Society  affirm  the 
policy   that  withdrawal  of   individual   ISMS  members 
from   the  Medicaid  and  Medichek  programs  will  not 
be   considered  unethical,    unprofessional   or  dis- 
ho  nest."    1  ' 

It  was  against   this  background   that   the   local  project  was  attempt- 
ing  to   establish  a  working   relationship  with  the   Illinois  Depart- 
ment of  Public   Aid  and   Illinois   Department   of  Public   Health  to 
assist  with  local   implementation  of   the  Medichek  program. 

At   the   local   level,   project   staff  has   been   faced  with  con- 
tinual withdrawal  of  physician  participation   in   the  Medichek  pro- 
ject as   a   result  of   the  general   climate   already   noted   and  the 
specific   failure  of   the   project   to   resolve   long   identified  problems. 
The  growing     frustration,   particularly  among  primary   care  phy- 
sicians,  was   best   summarized   in  the   annual   report   to   the  Board  of 
Directors   by  George  E.    Hord,    M.D.,    Chairman,    Public   Health  and 
Medical   Services  Committee: 

"I   doubt   that   any  undertaking  of   this   Society   has   so  tested 
the   frustration  tolerance  of   those   involved.      Details   of  most  of 
the  problems   encountered  have   been   elucidated  by  Doctor  Albert 
Ray   in  his  November  appearance  before   the   Illinois  Legislative 
Advisory  Committee  on  Public  Aid.... 

"However,  more  important  than  any  of  these  enumerated  prob- 
lems are  the  attitudes  toward  Medichek.  The  Illinois  Department 
of  Public  Aid  views  it  as  a  bastard  child  dumped  on  its  doorstep 
and  gives  it  minimal  attention.  Legislators  are  poorly  informed 
and  perplexed  by  the  commotion.  Most  physicians  see  it  as  another 
bureaucratic   infliction  upon  them.      The  public   remains  apathetic. 

"Our  official   involvement   in   the  Medichek  Project  ends 
July   1,    1976.      Despite   the   difficulties,   we   are   continuing   to  do 
what  we   can ...  . 

"In   the  past   eighteen  months,    we  have   seen   only   token  and 
superficial   changes  made   in  Medichek.      Unless   dramatic  revisions 
are    soon   forthcoming,    Medichek   is   doomed   to   an   agonal  demise. 
May   it  rest   in  peace   and  may  we   choose   our  windmills  more  care- 
fully in  the   future."  *-8 

i  -j 

Resolution   7  5  N  -  2  5  ,    HO use   of   Delegates,    Illinois   State  Medical 
Society,   Adopted  November   12,  1975. 

EPSDT/Medichek ,    1975    Year   End   Report,    George   E.    Hord,  M.D., 
presented   to   the   3oard  of   Directors   of   the  Will-Grundy  County 
Medical   Society,    January   11,  1976. 


This   summation  was   supported  by  a   report   to   the  Will-Grundy  County 
Medical   Society  Board  of  Directors,    documenting   the   investment  of 
over   330  physician   hours   in   the  project  operation  between   July  1, 
1975   and  December   31,    1975.      Local  physician   frustration  with  the 
Medicaid   system  was   sharply   illustrated  again   in  April,    1976,  with 
the  decision   of  a   large  mu 1 1 i - spec ial ty  group   in  Joiiet  providing 
medical   care   to   approximately  one-half   the   Medicaid-eligible  fam- 
ilies  in  Will   County,    to   terminate   services.      That  decision  was 
withdrawn  but   the   group   remains   opposed   to   continued   long  range 
participation   in   the  Medicaid  program. 

What,    then,    have  we   learned   through  discussions   with  state 
and  national   leaders   concerning   implementation   of  SPSDT  at  a  local 
level?     Our   findings   can  be   briefly  summarized: 

A.      The  problems   initially   identified   in   1974   in        "A  Report  on 
Professional  Health  Provider   Participation,    EPSDT/Medichek , 
and  restated   in  Professional   Health  Provider  Participation, 
EPSDT/Medicaid ,    our   1974-75   final   report,   remain  virtually 
unchanged.      The   slowly  and   carefully  developed  recommendations 
for   solutions   of   these  problems   remain  unconsidered  and  un- 
implemented.      Local  project   attempts   to   open   channels  of 
communication   for   cooperative   discussion  of   these  problems 
for  a  period  of   two   years  were   greeted  with  apathy  and  dis- 
regard . 


3.      A  county  medical   society  alone   is   unable   to   overcome  the 
dynamics   of   larger   events  which  contribute   to   a  deterior- 
ating relationship  between  organized  medicine   and  state 
government   to   accomplish   the   goals   of   a   local  project. 
These   events,    and   the   general   climate   in  which  this  project 
was   conducted,    effectively  prevented  the  Will-Grundy  County 
Medical   Society   from  having  a   significant   impact  on  implement- 
ation of  delivery  of   the   EPSDT  program. 


(23) 


COMMUNITY   HEALTH    SERVICES  PROGRAM 


The  Community  Health  Services   Program  was   originated  from 
the   findings   of   the   1974-75   sub-contract  period.      The   impetus  for 
the   inclusion  of   the  program   into   the  present   contract  was  the 
cancellation   of   the   Society's  physician   rotation  program.      As  a 
result  of   that   cancellation,    the   Executive   Committee   of   the  Society 
authorized  the   immediate   investigation   into   developing  an  altern- 
ative  delivery   system.      That  directive  was   refined   in   the  proposal 
to   develop   the   1975-76  contract: 

"....it  was   recognized   that   the  private  practitioner  could 
not  handle  EPSDT  needs   alone   and   that   the  professional  community 
must   take  a  leadership  role   in  developing  accessibility  to  the 
health   care   systems  even   to   the  point  of   encouraging  non- 
traditional  methods   of  delivery  of  health  care   services.    The  con- 
tractor  intends   to   find  or   develop   the   needed  alternatives."  19 

A   further  refinement  of   the   concept   is  mandated   in   the  contract: 

"3.      Development  of   a  plan   to  provide   a  Community  Health 

Services   Program.      This  plan  would   address   the  following 
issues  : 

A.  Ability  to  utilize   related  health  professionals   in  the 
delivery  of  primary   care  services. 

B.  Methodology   for  the   delivery  of   coordinated  community 
health  welfare   and   social   services  by  taking   those  services, 
where  practical,    to   the   target  population. 

C.  Recruitment,    and  potential   employment  of  physicians   to  work 
in  the  Program. 

D.  Removal  of  historical  barriers   to  accessibility  to   care  caused 
by   inadequate   numbers   of  primary  health   care  providers.  20 


Request  for  Non-Competitive  Procurement,  Helen  S.  Martz,  Ph.D, 
dated  May   7,    197  5. 


20. 


Scope   of   Work,    Contract   SR3    300-75-0030,  date; 


un 


30, 


1 9  7  5 


(29) 


The  planning   structure   to   implement   the   contract  mandate 
was   in  place,    in   the   form  of   the   Community  Steering  Committee, 
prior  to   the   beginning  of   the   contract.      The  Committee  included: 

Executive   Director   -  Will   County  Health  Department 

Executive  Director   -  Joliet-Will   County  Community  Action  Agency 

Executive   Director   -  Will,    Grundy,    Kankakee  Comprehensive 

Health  Planning  Council 

Supervisor   -  Will  County  Department  of  Public  Aid 

Administrator   -  Silver  Cross  Hospital 

Administrator   -  Saint  Joseph  Hospital 

President   -  Will-Grundy  County  Medical  Society 

The   Community  Steering  Committee  was   an   ad   hoc   group  initially 
formed   to  deal  with   the   effect  of   the   cancellation  of   the  Society's 
patient-physician   rotation  assignment  program  and   the  problems 
caused  by   the  resulting   increase   in  patient   load   in  hospital 
emergency   facilities.      The  group   conducted   several   informal  discus- 
sions prior   to   initiation  of   the   1975-76   contract  period  without 
formalizing   its   structure,    defining   its   role  or  establishing 
definite  goals.      Since   the   group   contained   all   of  the  community 
elements  which  would  have   been  gathered   to   address   this  phase  of  the 
contract,    it  was   continued  as   a   committee.      Input   from  the  Society 
was   arranged   through  creation  of   an   ad  hoc   committee   of  eight 
physicians  under   the   direction  of   the   chairman  of   the   Public  Health 
and  Medical   Services   Committee.      Five   of   the  physicians  were  mem- 
bers of   that   standing   committee,    three  were   drawn   from  the  general 
membership  of   the  Society. 

The  organization  of   the  Community  Steering  Committee   and  the 
ad  hoc   committees  was   informal   and  there  was   no   specific  under- 
standing of  the   role  of   each   in  relation   to   the   other   in  develop- 
ment of   the  program.      The  only   link  was   the  presence   of  project 
staff.      Members   of   the   Community   Steering  Committee  were  initially 
unaware   of  the   commitment   of   the   Society   to   the   contract.  Although 
members   of   the   ad  hoc   committee   were   aware  of   the  responsibilities 
of   the  contract,    they  defined   their   role   as   limited   to  providing 
medical   advice   to   plans   developed   by   the   Steering   Committee  and 
viewed   their    function   as    self -liquidating   by  January    1,    1976.  It 
was   the  general  understanding  of   the  Ad  Hoc   Committee   that  develop- 
ment of   the  program  requiring  their   input  would  be   completed  by 
that  date. 


(30) 


Again  the  discontinuity  between   contract  periods   at   a  local 
staff   level   caused   confusion   in   the  direction  of   the  program. 
Although   the   Community  Steering  Committee   had  been  meeting  for 
nearly  three  months  prior   to   implementation  of   the   contract  there 
were   no   records  of   the   activities   of   the  group.      The  Committee  had 
no   formal   leadership  until   immediately  prior   to   implementation  of 
the   contract  when   the  Executive   Director  of   the   Will   County  Health 
Department  assumed   that   function.      Through   a   series   of  individual 
interviews   with  members   of   the   Committee,   project   staff  was  made 
aware  of   a   series   of  very  general   decisions  made  prior   to  the 
beginning  of   the   contract   period   concerning   the   creation  and  op- 
eration of   a   community  health   center.      The   Community   Steering  Com- 
mittee  had  accepted  the   concept  of   a  health  access   station   to  be 
centrally   located   in  the   city  of  Joliet   to  provide   services   to  a 
target  population   roughly  defined  as   the  poor,    elderly,   public  aid 
recipients   and   those   in   need  of   service  who  were   not  on  public  aid 
but  unable   to  pay   for   services.      There  was   no   clear   definition  of 
what  those   services  would  be.      Members   of   the  Community  Steering 
Committee   favored   creation  of   a   separate   legal   entity   to  assume 
responsibility   for   operation  of   the  health  access   station  but  had 
not  determined  the   nature  of   that  entity  or  who   would  be  involved 
in   it.      Some   committee  members  were   concerned  about   the  possibility 
of   conflicts   of   interest,    duplication  of   services  or  competition 
developing  between   the   health  access   station  and  other  community 
organizations  providing   social   and  welfare   services   to   the  same 
broadly  defined   target  population. 

In   order   to   formalize   the  planning  process,   project  staff 
developed  and  presented   to   the   Community  Steering   and  Ad  Hoc 
Committees   a   timetable  of   activities  based  on   the   schedule  of 
anticipated  activities   included   in   the   contract.      This  timetable 
reflected   the  original   commitment  of   the   contract   to  complete 
planning  of   the  Community  Health  Services  program  by  January  1, 
1976.      Areas   of  responsibility  between   the  Community  Steering 
Committee  and  the  Ad  Hoc   Committee  of   the   Society  were  defined 
as    follows : 


Steering  Committee  Discussions. 

1.  Identification  of  basic   community  resources. 

2.  Development   of  methodology  for  gaining  access   to  resources 

3.  Development  of   specific  materials   reflecting  methods  of 
gaining  access   to   community  services. 

4.  Development  of   svstem   to   coordinate   health  welfare  and 


(31) 


3.      Ad  Hoc  Committee   -  Will-Grundy  County  Medical  Society. 

1.  Development  of  plan   to   evaluate   the   quality  of  services 
related   to   the  Community  Health  Services  Program. 

2.  Consultation  with  the  American  Medical  Association  relating 
to   the   technical   aspects   of   the   EPSDT  programs   and  the 
Community  Health  Services  Project. 

Other   features   of   the  planning   timetable   related   to   contact  with 
community  agencies   outside   the   Steering  Committee,    the   type  of 
service   agreements   necessary,    a  determination  of   the  possible  patient 
load,    the  type   of   legal   entity   to   assume  responsibility,    scope  of 
services   to  be  offered,    identification  of  potential   local,  federal 
and  private   funding   sources   and  development  of   a  draft  model. 

Recognizing   that  a  major  problem  area   is   the  growing  shortage 
of  primary  care  physicians   in  Will   County,    the   two   committees  in- 
dependently authorized  development  of   an  application   to   the  National 
Health  Service  Corps   seeking  designation  of  Will   County  as   a  critical 
medical   shortage  area  and  requesting   assignment  of  a  physician. 
A  preliminary  application  was   developed  and   submitted   to   the  Bureau 
of  Health  Manpower  on  July  18,    1975   and  was   refined  and  resubmitted 
on  July   30,    1975.      The   application  was  denied   in  September,  1975. 
The  denial  was   viewed  by  the   two   committees   as   a   setback   to  the 
project   since   the   application  had  been  regarded  as  one   tool  for 
physician  recruitment   for  the  health  access  station. 

Basic  weaknesses   in   the   involvement  cf   two   independent  com- 
mittees  appeared  rapidly.      An  obvious  weakness  was   in   the  exist- 
ance  of   the   committees   as   separate   entities  with   neither  assuming 
overall   responsibility  of  project  planning,   but  with  both  assuming 
equal  authority.      This  placed  project   staff   in   the  position  of 
attempting  to  obtain  dual  authorization   for  any  action  and  comp- 
licated coordination  of  overlapping   areas.      For   example,  both 
committtees   requested  cost   estimates   on  the  operation  of  the 
health  access   station  but  neither   could  arrive   at   specific  des- 
criptions  of   the   station  on  which  to  base   the   estimates.      It  was 
impossible   to  develop   this   information  accurately  without  first 
defining   the   scope  of   services   to   be   offered.      Development  of 
that   information  with   the   separate   assistance   of   each  committee 
required  more   than  a  month.      During   that   time,    project   staff  re- 
mained the  only  link  between  the   committees.      An  attempt  was  made 
to   correct  the  weakness  by   installing   the   chairman  of   the   ad  hoc 
committee   as   a  member  of   the   Community  Steering  Committee.  This, 
however,    served   to   confuse    the   members   of   the   ad   hoc    committee  on 
their  role   in   the   project   and   their  responsibilities. 


Proposed  Timetabla   Community  Health   Services   Project,  Will-Grundy 
County  Medical   Society   5R3   Project,   Monthly   and   Progress  Report 
July,  1975. 


(3  2) 


The   confusion  was   compounded  by  a   reluctance   on   the  part  of 
individual  members  of   the   Community  Steering  Committee   to  make 
any   firm  commitments   in  behalf  of   their   respective  agencies  and 
their  reluctance   to   design  or   serve   as   part  of   the   legal  entity 
which  would  assume   control   of   the  project  on  a   long   term  basis. 

Following   a   series  of  meetings  with   staff   of   the  Department 
of   Rural   and  Community  Health  of   the  American  Medical  Association 
in  August,    1375,    local   staff   developed   recommendations   to  clarify 
the  planning   structure.      Although   it  was   felt   the   agencies  re- 
presented  in   the  Community  Steering  Committee   should   remain  in- 
volved  in   the  project,    local   project   staff   recommended  increasing 
membership  on  the   committee   to   include  persons   at   a  decision-making 
level   from  each  agency.      It  was   further  recommended   that  represent- 
ation on   the   Community   Steering  Committee  be  broadened  to  include 
other   segments  of   the   community,    specifically  the   business,  indus- 
trial  and   educational   communities.      With  the   committee   thus  re- 
organized and  expanded,   project   staff   recommended  dividing  the 
responsibility   in   a   specific   area.      Finally,    local   staff  suggested 
a  re-examination  of   the   concept  of   the   health  access   station  as 
previously  accepted  by   the  Community  Steering  Committee   in   light  of 
the   time   remaining  to   complete   the  project.      American  Medical 
Association  consultants   also   expressed   concern  at   the   decision  of 
the   Society's  Ad  Hoc   Committee   to  phase  out   as  of   January   1,  1976 
since   it  was   becoming  apparent  that  because  of   the   slowness  in 
planning,    the  project  would   not  be   completed  by   that  time. 

It   should  be   noted   that   the   slow  pace  of   the   project  during 
July,   August   and   September,    1975,    was   due   in  part   to   the  increasing 
diversion  of   local   staff   time   to   resolving   cash   flow  problems 
developing  as   a  result  of   the  payment  mechanism  described  earlier 
in  this   report.      The  amount  of   staff   time   absorbed   in  attempting 
to   resolve   the  payment  mechanism  with   the  Department  of  Health, 
Education  and  Welfare   increased  with  the  degree   of   severity  of 
the  problem.      By   the   end  of  September,    1975,    the   cash   flow  sit- 
uation had  deteriorated   to   the  point  where   the   continued  operation 
of   the   contract  and   employment  of   the   staff  was   in  danger. 

A  re-evaluation  of   the   project  during   September,    1975  ident- 
ified and   isolated   four  planning  weaknesses  which   inhibited  de- 
velopment of   the   health   access   station   as   concieved   by   the  Ste- 
ering Committee: 

1.    "Lack  of   specific   documented  need. 

This  became   apparent  when   attempts  were  begun   to  reasonably 
estimate   the   number  of  persons  who  would  use   the  services 

cf   the   health  access   station.    The   experiences   of  the 
Medi:al   Society   in   the  FFSDT   demons traticn  project,  the 
Physician   ".oiation  program   and   the   School   Screening  project, 


while   these   experiences   indicated  a   need   in   the   community  for 
development  of' an   alternative   system,    they   did  not  specifically 
define  that  need.      The   concept  of  a   large,    centrally  located 
facility   is   untenable  on   this  basis. 

2.  Lack  of  broad-based   community   involvement   in  planning. 

Many   segments   of  the   community,   most  notably  consumers, 
remain  absent   from  this   planning   effort.      The   lack  of  in- 
volvement of   the  business,    non-medical   professional  and 
educational   sectors   demonstrates   the   restricted  nature  of 
this  planning   effort   to   date.      While   tentative   attempts  to 
involve   some   of   these   components   were   not   successful,    it  is 
obvious   that  the   involvement  and  commitment  of   these  segments 
of   the  community  are   essential   to   the   success   of   the  project. 

3.  Duplication  of  services   in   the   low  income  population. 

This   relates   directly   to   the   development  of  a  clinic  serving 
low  income  persons   in  Joliet  and  will   be  discussed   later  in 
this  report. 

4.  Failure   to   specifically  define   area   to   be  served. 

Although  planning   in   this  project  was   being  done   on   the  basis 
of  serving  the   entire  population  of  Will   County   Illinois,  it 
became  obvious   that   the   service   area   under   consideration  in- 
volved only  a   small  portion  of   the   county.      We   found  the 
Community  Steering  Committee   had   not  admitted   that  a  small 
area  was   involved  but  they   really  had  not  defined   even  that 
area.      The   service   area  was  being  vaguely  described  as  the 
greater  Joliet  metropolitan   area".  22 

To  address   these  weaknesses,    the   Steering  Committee  adopted 
a  program  planning  outline   and  approved   the  development  of  a 
physician   survey   in  cooperation  with  the  Will,    Grundy,  Kankakee 
Comprehensive  Health  Planning  Council   to  provide   an   indicator  of 
physician  perceptions   of  delivery  problems.      In   addition,  the 
Will,    Grundy,    Kankakee   Comprehensive  Health  Planning  Council, 
a  designated   314    (b)    agency  under   the   Public   Health  Service 
Act,    was   asked   to   serve   as   a   resource   for   the   demographic  data 
needed   to   reasonably  project   community  need   for   the   services  of 
the  project. 


[34) 


In   adopting   the   following  program  planning   outline,  the 
Steering   Committee   agreed   that   the  outline   would   serve   as  the 
outline   for  development  of   a  project  model: 

"PROGRAM   PLANNING  OUTLINE 

I.  PROGRAM  OBJECTIVES 

A.  Provision  of  high  quality   comprehensive  medical   and  related 
health   servces  which  are   economically  available   and  acces- 
sible  to   residents   of  Will   and  Grundy  Counties. 

B.  Provision  of  high  quality  comprehensive  medical  and  related 
health  services  which  are  economically  available  and  acces- 
sible  to  residents   of  Will  County. 

II.  ALTERNATIVES 

A.  Permanent   community   facility  with   full   time  staff 

B.  Temporary   facilities   located   throughout   community  with  a 
rotating  health  care  team 

C.  Mobile   health  unit  or  units  with   full   time  staff 

D.  Permanent   community   facility  with   full   time   staff  using 
mobile   unit  or   units   with   rotating  health  teams 

III.    ALTERNATIVE  CRITERIA 

A.  Are   sufficient   resources   available   or  obtainable? 

B.  What  will  be  the   cost   for  services? 

C.  Will   the  alternative   improve   the  overall   health  of  the 
community? 

D.  Time   estimated   to   complete   the  alternative? 

E.  What  organizational   structure   is  required? 

F.  Can   the   alternative   be   coordinated  with  on-going  fun- 
ctions  and  programs? 

G.  Will   the   alternative  be   acceptable   to   the  professional 
and   to   the  consumer? 


(35) 


IV.  SELECTION   OF  ALTERNATIVE 

A.      3ased  on  which   alternative  meets   the  majority  of 
criteria  while  meeting   needs   of  community. 

V.  COMMUNITY  NEED 

A.      Physician  Survey 

3.      Consumer   Health  Survey 

VI.  ORGANIZATIONAL  APPROACH 

A.      Community  Health  Services  Council 

1.  Health  Services  Providers   and  Educational  Institutions 

2.  Community  Groups   and  Individuals 
a.  Industry 

b  .      Bus ine  s  s 

c.  Non-health  Professionals 

d.  Civic  Groups 

e.  Educational  Leaders 

f .  Local   Government  Officials 

3.  Consumers   of  Health  Services 

a.  Educational  level 

b.  Family  Income 

c .  Ethnic 

d.  Age  group 

f.      Vocational  representation 

4.  Size  of  Council 


(36) 


5.  Function 

a .  Sat  general  policy 

b.  Develop   constitution  and  by-laws 

c.  Decision  making 

d.  Selecting  consultants  or  enlisting  aid  of  specified 
sub- committees 

e.  Serve   as   requesting  agency  for  outside   financial  aid 

f.  Coordination  with  overall   community  planning  efforts 

.    .     .         2  3 

g.  Inform  the  community  or  activities 

During  the  period  of   September   and  October,    1975,    the  focus 
of  both  the   Community  Steering  Committee   and  the   ad  hoc  committee 
of  the  Society  was  diverted  from  planning  by  the   implantation  of 
a  new  medical   clinic   in  Joliet.      Since   the   new  clinic  was  located 
in  the   same  general   area  under   consideration   for   the   health  access 
station  and  was   attempting  to  provide  medical   care   to   the  same 
target  population,    both  committees   questioned   the   need   to  continue 
with  the  project.      Instead,    contact  was   initiated  with   the  admin- 
istrators  of   the   new  clinic   to   explore   the  possibility  of  developing 
a  contractual   arrangement  with   the   clinic   for  primary   services  with 
the   two  project   committees   assuming  responsibility   for  development 
of   the   related   social   and  welfare   services.      This   approach  was  dis- 
continued when   information  developed  by  the   Community   Steering  Com- 
mittee under   the  program  planning  outline   indicated   the   new  clinic 
alone   could  not   satisfy  projected  need  and  the   ad  hoc  committee  of 
the   Society  was   unable   to  resolve  questions   concerning   the  organi- 
zation and  operation  of  the   clinic   and  the   quality  of  care  delivered 

The   decision  to   discontinue   negotiations  with  the  clinic 
was  based   in  part  on  the   findings   of  a   special   data  sub-committee 
of   the   Steering   Committee  which  was   charged  with   the   task  of 
addressing  the   lack  of   specific  documented  need.      With  staff 
assistance   frcm  the  Will,    Grundy,    Kankakee   Comprehensive  Health 
Planning   Council,    the   sub-committee   was   able   to   assist   the  Steering 
Committee   in  determining  the  primary   service   area  for  the  project 
as   four   urbanized   townships   in  the   northwest  quadrant  of   Will  County 


(37) 


Ac  the  same  time,  the  Steering  Committee  adopted  an  outline  for 
pro  i  ect   model : 


"COMMUNITY    HEALTH    SERVICES  MODEL 
PLANNING  OUTLINE 

I.      PROBLEM  DEFINITION 
III.      GOAL  STATEMENT 
III.      COMMUNITY  NEEDS 
IV.  ALTERNATIVES 
A.  Cost 
3 .  Location 
C.  Manpower 
V.      DEVELOPMENT   OF   COMMUNITY    HEALTH  COUNCIL 
VI.      DEVELOPMENT   OF    COMMUNITY   HEALTH  PROGRAM 
A.  Implementation 
3  .  Operation 
VII.       PROGRAM   EVALUATION  24 


The   Steering  Committee   also   approved  a   staff   timetable   for  de- 
velopment of   the   actual  model   specifying  presentation  and  re- 
view of   all  outline   steps   except   Step   IV  by  mid -No vember ,  1975, 
presentation   and  review  of  Step   IV   in   early  December,    1975  and 
completion  and   submission  of   the  project  model   at   the   end  of 
December ,    197  5. 

The   Project  model,    excluding   Step   IV  was   completed  and 
accepted  by   the  Steering  Committee.      A  copy  of   the  model  was  sub- 
mitted  as   Attachment  A   to   our   November,    1975,    Progress   Report  and 
is    included   as   Exhibit   I    to   this    report.      The   development  and 
adoption  of   the  project  model   served   to   resolve   the  earlier 
identified  planning  weaknesses   in  the  Community   Health  Services 
program  and   also  provided   a   frame  work  of   specified  activities 
to    allow   the   Community    Steering   Committee    to   proceed   with  the 
project.   Throughout  the  period  of  identification   of  weakness, 

"^Will-Grundy   County  Medical    Society   3RS    P r  o  j  ac r -Mc n thly 
Progress   Report,    October,  1975. 


(38) 


re-evaluation  and  development   of   the  project  model,    the  support 
and  assistance   of   staff  of   the  Department  of   Rural   and  Community 
Health  of   the  American  Medical  Association  was   invaluable.  The 
American  Medical   Association  provided   technical  reference 
materials   and   advice   to   local  project   staff   through   each  stage 
of  development  of   the  model. 

Several   factors   contributed   to   the   extremely   slow  pace  of 
development   and  completion  of   the  project  model.      Throughout  the 
period  of  July   to   December,    1975,    the   organization  of   the  Com- 
munity Steering  Committee  remained   loose   and   informal.      It  was 
difficult   to   assemble   the  Committee  more   than  once  or   twice  per 
month  and  attendance   at  Committee  meetings   was   sporadic.  The 
Committee   also  demonstrated  a  reluctance   to  make   formal  decisions 
on  various   staff  recommendations   often   creating  an  atmosphere  of 
confusion  about  the   status   of   the  project   at  various   times.  This 
general   lack  of  direction  was   further   complicated  by   the  continued 
existance  of   the   dual   committee   structure.      Despite   attempts  to 
draw  the  Community  Steering  Committee   and   the  Ad   Hoc  Committee 
of   the   Society  together,    the   groups   remained   independent.  The 
necessary  re-evaluation  of  the  project  which   led   to  development 
of   the  project  model   removed   emphasis   from  the   role  of   the  Ad  Hoc 
Committee  which  had  responsibility   for  medical   input   to   the  pro- 
ject.     Although   it  became  apparent   that   the  project  would   not  be 
completed   in  the  original   six  month  time   frame,    the  Ad  Hoc  Com- 
mittee did  not   change   its   resolution   to  dissolve   as   of  January  1, 
1976.      Active  participation  by  physicians   on   the  Ad  Hoc  Committee 
through  the  period  of  July  to  December   1975,    was   sporadic  limited 
basically   to   the   specialist  members   of   the   committee.  These 
specialists   also   served  on   the  Community  Steering  Committee  but 
there  was   little   interaction  between  the  groups.      Some  of  these 
difficulties  were   summarized   in   a  report   to   the  Board   of  Directors 
of   the   Society   in  January,  1976: 

"The   concept  of  a  Community  Health  Services  project  grew  out 
of   the   failure   of   our   rotation   system   to   fulfill   the  medical  needs 
of   those    in   this    community  without   a   physician.      A  Community 
Steering  Committee  was   formed  and  expected   to  develop   the  project 
model  with   the   necessary  medical   input  being   supplied  by   this  Ad 
Hoc   Committee   of   the  Medical   Society.    Unfortunately,    the  Steering 
Committee   was   reluctant    in  making   firm   commitments   and    slow  in 
formulating  any   sort  of  plan.      Consequently,   with  a   looming  con- 
tract  deadline,    the   responsibility   of   model   development   fell  on 
(project   staff)    and   the  Ad  Hoc  Committee.      This  monumental  task 
was  made   even  more   difficult  because   anticipated   technical  assist- 
ance   from  CHP   and   DHEW   has   been    lacking.      Even   the   Ad   Hoc  Commit- 
tee  itself  has   been  difficult   to   assemble   and  certain  committee 
members   vet    to    be  seen." 


(29) 


"Soon  we  must  present   this   finalized  package   to   -he  Medical 
Society   for   approval  or   revision.      It   can   then  be  presented  to 
the  Community  Steering  Committee    (or   Board   of   Directors)    to  put 
into   action.      We  will   meet  our   contract   deadline.      However,  based 
on   the   early   inertia  of   the   Community  Steering  Committee,    I  remain 
somewhat   skeptical   about   the   implementation  of   this  model.  It 
will   necessitate   full   cooperation  of  many  agencies,    and  based  on 
earlier   reluctance,    it  may  not  be   forthcoming.      As   a   Society,  we 
cannot,    and   should   not   even   attempt   to,    implement   this  project 
alone."      2  5 

The   development  of   the   project  model   and   its  implementation 
by   the  Community  Steering  Committee  was   also   seriously  hampered 
by   the   loss   of  members   from   the   Committee.      Since   each  member  of 
the  Committee   represented  a   segment  of   the   community  vitally  im- 
portant  to   the  project,    the   departure   of   any  member  diminished  the 
capability  of   the   Committee.      Between   July   and  December,    1975,  the 
Committee   lost   the  participation  of   the  Will   County  Department  of 
Public   Aid  and  the  Will,    Grundy,    Kankakee  Comprehensive  Health 
Planning  Council. 

Representation  of   the  Will   County  Department  of   Public  Aid 
was   lost  with  the   transfer  of   the   local   supervisor   to  another 
post.      The  position  was   left  unfilled  by  the   Illinois  Department 
of  Public  Aid   for   several  months.      When  a   new   supervisor  was 
appointed,    he   did   not  respond   to   invitations   to   j o in  . the . Communi ty 
Steering  Committee.      The   loss   of   the   only   link  between   the  project 
and   the   public   aid   system  deprived   the   Community  Steering  Committe 
of   needed   input  relating   to   problems   of   the  majority  of   the  target 
population . 

The   loss   also   terminated   the  development  of   a  mechanism  to 
include   EPSDT   services   in   the  project  model  or   to   explore  means 
of  removing  administrative   roadblocks,    identified   earlier   in  this 
report   in   the   implementation  of   the  project  model. 


Community  Health  Services   Project,    Year   End   Report,    George  E. 
Hord,    M.D.,   presented   to  3oard  of   Directors,   Will-Grundy  County 
Medical   Society,    January   11,  1976. 


(40) 


The  active   involvement  of   the  Will,   Grundy,  Kankakee 
Comprehensive  Health  Planning  Council   on  the   Community  Steering 
Committee   ended  abruptly   in   December,    1975,    with   the  dismissal 
of   the  Executive   Director  of   that  agency.      This   action   left  the 
Commmunity  Steering  Committee  without  a   source  of  localized 
technical   information  necessary   to   the  development  of   the  project 
model.      The   loss   of   this   agency  on   the  Committee  deprived  the 
Committee  of   its   research  arm.      The   involvement   and   support  of 
the  Will,   Grundy,    Kankakee  Comprehensive   Health  Planning  Council 
had  been  one  of   the   primary  reasons   for   inclusion  of   the  Community 
Health  Services   Program  as   part  of   the   Society's   contract.  With- 
out  access   to   the   resources   of   the   agency,    completion  of  the 
project  model,   primarily  a   staff   document,    was  very  difficult. 

The   Community  Steering   Committee   encountered  another,  un- 
anticipated    obstruction   through  Public   Law   93-641,    the  National 
Health  Resources   and  Development  Act  of   1974.      The  Will,  Grundy, 
Kankakee  Comprehensive  Health  Planning  Council   became   an  applicant 
for  conditional  designation  as   a  Health  Systems   Agency  under  the 
new  planning   law.      Although   the  Community  Steering  Committee  was 
not  aware,    staff  participation  of   the   agency   in   the  Community 
Health  Services  project  was   increasingly   limited  during  the  period 
of   September  to   December,    1975,    as   the  HSA  application  was  developed, 
The  decreasing   availability  of   assistance   from  the   agency  accelerated 
following   the  dismissal  of   the  Executive   Director  of   the   agency  in 
December,    1975.      This   increasing   internal  preoccupation  with  com- 
pletion of  the   HSA  application  prevented  completion  of   items  im- 
portant to  the  Community  Health  Services  project.      For  example, 
in  writing  the  project  model,   project   staff  was   left  with   the  task 
of   sorting  out   a  mass   of  demographic   information   supplied  by  the 
Will,    Grundy,   Kankakee   Comprehensive  Health  Planning   Council  after 
much  of   the  data  proved   to   be  outdated,    unreliable  and  unrelated. 
This   task  was   completed  with  the   assistance  of   staff  members  of 
the  Department  of   Rural   and  Community  Health  of   the  American  Medical 
Association.      The  physician   survey,    initiated  during   the  re-eval- 
uation of   the  project   in  September,    1975,    although  scheduled  for 
completion  within   six  weeks,   was   never   finished.      The   reason  did 
not  become  apparent   for   several  months: 

"Unfortunately,    the   final   report  of   the   Physician  Survey, 
undertaken  by   the   Comprehensive   Health  Planning  Council  will  not 
be   available  until  March   15,    1976.      The   reasons   for   the  delay  are 
twofold:    1)    at   the   onset   of    the   Physician   Survey,    I   was  unaware 
that   I   would  be   assigned,    full   time,    from  November   15th   to  January 
19,    1976,    to   work   on   the   Health   Systems   Agency   Application,  and 


(41) 


2)    than   our  Project   Review  Officer  would  resign,    causing  my 
assignment  to  Project  Review."* 

As   internal  problems  over   staffing  and  management  of   the  agency 
increased   during  January  and  February,    1976,   work  on   the  physician 
survey  was   not   resumed   and  was   dropped   following   the  resignation 
of   the   staff  liaison. 

Development  of   the  HSA   application  placed  other  pressures  on 
members   of   the   Community  Steering  Committee  which  brought  im- 
plementation of   the  project  model   to   a   virtual   halt   for  several 
months.      Because  of   the   inter-relationship  of  the  community,  all 
non-physician  members   of   the   Community  Steering  Committee  were 
also  members   of   the  Board  of  Directors   of   the  Will,  Grundy, 
Kankakee   Comprehensive  Health  Planning  Council.      The   time  of 
these  Committee  members  was   increasingly  absorbed  by  problems 
surrounding  completion  of   the   HSA  application  and  by  growing  pro- 
blems regarding   the   continuation  of   the  CHP   agency  itself. 
During  the  period  of  January   to   March,    1976,    the   agency  faced 
serious   internal  problems   relative   to   financial  management  and 
staffing.     While   implementation  of   the  Community  Health  Services 
project   lay  nearly  dormant,    Community  Steering  Committee  members 
devoted   their   energies   to  addressing  other  problems.  These 
problems  were   finally  resolved   in  April,    1976,    by   the  withdrawal 
of  designation  of   the  Will,    Grundy,  Kankakee  Comprehensive  Health 
Planning  Council   as   a   314    (b)    agency  by   Region  V,    Department  of 
Health,    Education   and  Welfare   and   the   closing  of   the  agency. 

The   structure  of  the   Community  Steering  Committee  was  also 
threatened  by   the   opposition  of   the   Society   to   the  HSA  application, 
spearheaded  by  physician  members   of   the   Committee.      This  opposition 
developed  after   the   Society  was   asked   for   a   routine   endorsement  of 
the  application   in  December   1975.      Project   staff  was   assigned  to 
review  the  application  which  resulted   in  the   opposition  of  the 
Society  to   several   technical   components   of   the   application.  This 
opposition  resulted   in  physician  and   staff  participation   in  a 
series   of  meetings   during  December,    1975   and  January,  1976, 
directed   at   correcting  what   the    society  viewed   as   gross  defic- 
iencies  in   the   application.      When   these  meetings   failed   to  resolve 
differences   over   the   application,    the   relationship  between  the 


Ken  Marshall,    Health   Planner,    Will,    Grundy,    Kankakee  Compre- 
hensive  Health   Planning   Council,    Memorandum   to   R.    3ryant ,  Will- 
Grundy  County  Medical   Society,    January   21,  1976. 


(42) 


Society  and   the  Will,    Grundy,    Kankakee   Comprehensive   Health  Plan- 
ning Council   solidified   into   adversary  positions.      Under  the 
pressure  of   these   positions,    staff   level   communication  became 
strained,    then   ceased   completely.      These   events,    coupled  with  the 
eventual   denial  of   the   HSA  application  and   the   closing  of   the  Will, 
Grundy,    Kankakee   Comprehensive  Health  Planning  Council,  combined 
to   deprive   the   Community  Health  Services  project   of  one  of  its 
most   important   local   sources   of   support   and   assistance.      The  small 
momentum  of   the  Community     Steering  Committee,    generated  by 
completion  of   the  project  model   in  December,    1975,   was   at  first, 
disrupted,    then  halted  by  the  pressure   of   larger,    outside  events. 

During   the  period  of  mid-January,    1976   to   late  April,  1976, 
physician  members   of   the  Community   Steering  Committee  attempted 
to  restart  movement   in   the  project  by   attempting   to   develop  a 
firm  concept  of  a   feasible   alternate   delivery  system: 

"The  Ad  Hoc   Committee  of   the  Will-Grundy  County  Medical  Society 
has  been   considering  alternative  methods   for   delivery  of  primary 
care   services   in   the  Community  Health  Services   project.      The  com- 
mittee has   arrived   at  what  would   appear   to   be   a  viable  means  of 
providing   services   but  wishes   to   communicate   the  options   to  the 
Community  Steering  Committee  prior   to   inclusion   in   the  project 
mode  1 . 

Research  by  the  Ad  Hoc   Committee   indicates   that  the  develop- 
ment of  an   independent   free-standing   clinic  may  be   an  unnecessary 
duplication  of   services   already  available   in   the   four  townships 
considered  the  primary   service  area  of   the   project   and  assured 
continuous   funding   from  any   source   in   the   current  political  climate 
seems  unlikely.    It  would   seem  a  more  valid   approach   for   the  Com- 
munity Steering  Committee   to   consider  developing   appropriate  con- 
tractual  arrangements   with   several   already   existing  entities  to 
deliver  primary  care   services.      The  Ad  Hoc   Committee  has  only 
recently  become  aware  of   the   development  of   facilities   within  the 
community  which  would   allow  this  approach. 

If  a  contractual   approach   is   acceptable,    it  would   leave  the 
Community  Steering  Committee  with  the   responsibility   to  develop 
only   a   small,    reasonably   inexpensive   administrative  facility. 
It  would  be   the   responsibility  of   this   administrative  structure 
to   negotiate   contracts,    to   register  patients   and  guide   them  to 
appropriate    facilities   and   to   provide   negotiating   services  be- 
tween the   Illinois   Department  of   Public   Aid  and   the  participating 
facilities.      These   negotiating   services  would   include  prior  review 
of   Medicaid   and   Medichek   bills   and   the    resolution   of  disputes 


between   IDPA   and  participating   facilities.      Ail   payments,  however, 
would  be  made   directly   to   the  participants.      Once   this   system  is 
established   and  operating,    efforts   can  be   initiated   to  develop 
ancillary   services   and   transportation   services   through   the  ad- 
ministrative core. 

It   is   also   the  opinion  of   the   Ad  Hoc   Committee   that   the  Com- 
munity Steering  Committee   should   carefully   consider   the  potential 
impact  upon   this   project  of   the   impending  development  of   a  Health 
Systems  Agency.    The  Will,    Grundy,    Kankakee  Comprehensive  Health 
Planning  Council  has   already  organized  an  ambulatory   care  committee 
which  has   set   ambulatory   care   planning  and  resources   development  as 
its  primary  goal.      It   is   reasonable   to   assume   that   if   the  Will, 
Grundy,   Kankakee   Comprehensive  Health  Planning  Council  receives 
conditional  designation   as   a  Health  Systems  Agency  under  Public  Law 
93-641,    the   function  of   the   ambulatory  care   committee   will  be 
transferred  to   the   new  agency.      The   nature  of  PL   93-641   is  such 
that  the  Health  Systems  Agency  will   have   significant  authority  over 
the  development  of  projects   such   as  ours. 

Public   Law  93-641   specifically  provides   that   each  Health 
Systems  Agency  will  be   generally   responsible   for  preparing  and 
implementing  plans   to   improve   the   health  of  residents   of   its  health 
service   area;    to   increase   the   accessibility,    acceptability,  con- 
tinuity and  quality  of   health   services   in   the  area;    to  restrain 
increases   in   the   cost  of  providing   health   services;    and  to  prevent 
unnecessary  duplication  of  health  resources.      The   law  also  pro- 
vides  that  Health  Systems  Agencies  will   review  and  approve/disap- 
prove  applications   for   federal   funds   for  health  programs  within  the 
health   service   area.      It   is   the   opinion  of   the  Ad   Hoc  Committee 
that   these   are  valid   issues   for   the   Community  Steering  Committee 
to   consider  at  this  time. 

It   is   the   suggestion  of   the   Ad  Hoc   Committee   that   the  Com- 
munity Services   Committee  meet  at   the   earliest  possible  date  to 
review  these   issues   relative   to  Health  Systems   Agencies   and  to 
consider   the   alternative   for  delivery  of   services  broadly  outlined 
in   this   letter."  ^7 


George  Hord,  M.D.,  letter  to  James  Barringer,  Chairman,  Community 
Steering   Committee,    January   14,  1976. 


(44) 


The   impetus   for   this   suggestion  was   the  development  of  an 
informal   outpatient   clinic   by   a  private   group   of  physicians  under 
contract   to  provide   emergency  room   services   at  Silver  Cross  Hospital 
in  Joliet.      The   suggestion  was   also   a   restatement  of   the  Society's 
concern   to  utilize   existing   facilities   in   the   community  rather  than 
impose   new  duplicative   facilities.      This   concern  had   first  been 
expressed   in  October,    1975,    in  attempts   to   develop  a  contractual 
arrangement  with   the   clinic   described   earlier   in   this  report 

Although  the   Community  Steering  Committee  met   to  consider 
the   suggestion  and  authorized  project   staff   to   develop  a  model 
contract,    the   effort  was   forestalled  by   the   controversy  surround- 
ing  the  Health  Systems  Agency  application   and  other   internal  problems 
of   the   Will,    Grundy,    Kankakee   Comprehensive   Health   Planning  Council 
to  which   the   Community  Steering  Committee   was  tied. 

Two   events   in  April,    1976,    caused  the   rebirth  of   the  Community 
Health  Services  project.      The   first  was   the   release   of   $30,000  in 
federal   revenue   sharing   funds  by   the  City  of  Joliet   to   the  Joliet- 
Will   County  Community  Action  Agency   for  use   in  the  project.  The 
funds  had  been  placed   in   escrow   in  December,    1975,    following  a 
preliminary  review  of   the  project  model.      The   second   event  was  a 
reaction   to  mounting  physician   frustration  with   the   Illinois  De- 
partment of  Public  Aid  with   the   tentative   decision  of  a  large 
multi-specialty  group   to  discontinue  participation   in   the  Medicaid 
program.      That  tentative  decision  raised   the  possiblity  that  ap- 
proximately 45%   of   the   Medicaid  patients   in  Will   County  could  be 
without  direct  access   to  medical   care   except  through  hospital 
emergency   rooms.      Meeting   to  consider   these   developments,  the 
Community  Steering  Committee   arrived   at  a  number  of  important 
decisions,    some   long  overdue. 

Members   of  the  Committee   are   formalizing  their   commitment  to 
the   expansion  of  primary  care   services   through   incorporation  of 
a  non-profit   legal   entity  tentatively  named  Will  County  Health 
Care   Incorporated.      Members  of   the   initial   Board  of  Directors  are: 


Albert  W.    Ray,    Jr.,   M.D.,   Will-Grundy  County  Medical  Society 
Guy   A.    Pandola,    M.D.,    Will-Grundy  County   Medical  Society 
George   Z.    Hord,    M.D.,    Will-Grundy   County  Medical  Society 
James   3arringer,   Will   County  Health  Department 
Keyton  Nixon,    Administrator,    Silver   Cross  Hospital 
Robert  Schinderle,    Administrator,    Saint  Joseph  Hospital 
Doris   Dalton,    Executive   Director,    Joliet-Will   County  Community 
Action  Agency. 


The   legal   mechanics  of   incorporation  under   the   Illinois  General 
Not  For   Profit  Corporation  Act   are   underway  at   the  writing  of 
this   report.      The   new  Board  has   decided   to   implement   the  broader 
involvement  of   the   community  as  described   in  the   project  model 
upon  completion  of   formal  organization  of  the   corporation.  The 
project  model   itself  has   been   adopted   as   a  general   guide   for  the 
organization . 

The   new  3oard  has   also   voted   to  pursue  development  of 
alternative  delivery  mechanisms   beyond   the   expiration  of  the 
subject   contract  with  a   target  date   of  becoming  operational   as  of 
January   1,    1977.      Staff   support   in  these   efforts  will  continue 
from  the  Society. 

The   new  Board  has   begun   investigation   of  private  funding 
sources   for  development  of  new  ambulatory   care  mechanisms.  Pre- 
liminary  applications   for   funding   have  been  prepared   for   the  Mobil 
Foundation  of  Mobil   Oil   Company  and   for   the  Hospital   Research  and 
Educational  Trust  of   the  W.    K.    Kellogg  Foundation.      Copies  of 
these  preliminary  documents   are   included   as   Appendix   II   to  this 
report.      A  response   to   these   applications   has   not  been  recsived 
at   the  writing  of   this  report. 

In   summary,    the  Community  Health  Services  project  must  be 
viewed  as   a  qualified   success.      The  project  was   initiated   in  con- 
fusion over   the   roles  of   its  various   components,    its   goals,  its 
direction  and   the   relationship  and   responsibilities   of   its  par- 
ticipants  to   this   contract.      Much  of   this   confusion   can  be  at- 
tributed to   the   discontinuity  between   contract  periods   and  changes 
in   local  project   staff  as   discussed   earlier   in   this   report.  The 
project   survived  a   searching   re-evaluation  of   its   structure  and 
necessity  and   succeeded   in  development  of  a  model  with  the  po- 
tential  of  expansion   into  an  alternative  delivery   system.      It  will 
be  possible  within   that   structure   to   design  a  mechanism   for  con- 
tinued delivery  of  EPSDT   services   and   to   explore   the  development 
of  an  ambulatory   care   review  system  as   a  method  of   evaluation  of 
the  projects'    services   to   its   target  population. 

The  decision  of  members   of   the   health   care   community  to 
the  project  was   demonstrated  by   their  withstanding  of  unforeseeable 
events   and  by   continuance  of   the   project  despite   the   loss  of 
several   important   components.      The   loss   of   these   components,  par- 
ticularly  of   the  Will,    Grundy,    Kankakee   Comprehensive  Health 
Planning  Council,    contributed   to   the   slow  progress  which  character- 
ized the  project.      Despite   the   setbacks,    there  was  progress  through- 
out  the  project  and  majority,    if   not   all,    of   the  objectives   of  the 
project  were    accomplished    orior   to   the   end   of   the  contract. 


(45) 


SCHOOL    SCREENING  PROGRAM 


The   1976   School   Screening  Program  was   a  major   component  of 
contract   SRS    500-75-0030   as  mandated   in  Exhibit  A  of   the  scope 
of  work  of   the   contract.      The   exhibit  consists   of   an  outline 
prepared   following   evaluation  of   the   school   screening  program 
under   the   1975   sub-contract   as   an   attempt   to   develop   a  more 
adequate  mechanism   for  mass   screenings.      The   outline  provided 
specific   guidelines   to   elevate   the   qualtity  of  physical  asses- 
sments performed   in   a  mass  setting: 

MECHANICS 

To   facilitate   handling   large   numbers   of   students   the  scre- 
ening could  be  broken  down   into   three  phases;    pre-screening , 
screening  and  evaluation. 

1.  Pre-screening;    this  phase  of   the  program  would  include 
medical   history   taken  by  qualified  volunteers,  immunization 
history,   developmental   history,   psychologic  evaluation, 
T.B.    testing,    urine  and  hemoglobin  testing   and  statistical 
data  collection. 

2.  Screening 

a.  General  Physical 

b.  Special  Neurologic 

c.  T.B.    Test  Reading 

d.  Dental  examination-at   the  discretion  of   the   Dental  Society 

3.  Evaluation:    This  phase   could   take  place   shortly  after  the 
screening  with   staffing  by   teachers,   psychologists,  social 
workers   and  physicians   reviewing   the   information  gathered 
and  the   following   dispositions  made: 

a.  Medical  problems   referred   for  diagnosis   and  treatment. 

b.  Dental   referral    for   corrective  work. 

c.  High  risk  educational  problems  directed  toward  immediate 
placement  in  individualized  remedial  programs  after  more 
extensive  testing. 


(4?; 


d.      Low   risk   problems   directed    toward   regular  classroom 
activity  but  under   close   observation."  *° 

In  addition,    the  pr e-scr eening  portion  of   the   outline  contained 
seven  specific   recommendations   to   implement   the   generalized  con- 
cepts  included   in   the   introductory   statement.      The   approach  was 
designed  to  provide   the  physician  with   the  most   complete  infor- 
mation  available   on   aach   child  participating   in   a  mass  screening 
examination.      The   task  of   the  project   staff  was   to  define  and 
develop   the   specific   activities   to   implement   the  outline  through 
available   resources   in   the  community. 

The  organization  vehicle   chosen   to   implement   the   1976  School 
Screening  Program  was   the  School   Health  Advisory  Council.  Composed 
of   representatives   of   the  Will  County  Health  Department,  the 
Joliet-Will  County  Community  Action  Agency,    school   nurses  from 
Joliet  Grade   School   District   86, the  office   of   the  Will  County 
Educational   Service   Region  and   the  Medical   Society,    the  Council 
was   formally  organized   from  the   committee  which  planned  and  directed 
the   1975   school   screening  program.      Although     a   new  organization 
in   its   formal   state,    the  Council  was   experienced   in   the  program 
and   incorporated   the   elements   necessary  to   implement  the  mandated 
outline  of   the   1976  program. 

The  point  of  departure   for   the  program  was   identical   to  the 
1975  program;    a  requirement  by  the   State   of   Illinois   that  children 
entering  kindergarten,    5th  grade   and  9th  grade   complete  a  physical 
examination  prior   to   the   beginning  of   the   school   year.      Each  year 
the   schools   are   faced  with  the  problem  of   indigent   families  who 
do   not   complete   the  required   examinations,   because  of  financial 
difficulties,    the   family  does   not  have   a  regular  physician,  or 
through   parental   apathy.      While   state   law  requires   that  children 
who  do  not  complete   the   examinations   be   excluded   from  classes, 
the   schools   are   reluctant   to   take   that   step.      Thus,    the  school 
screening  program  provided  an  opportunity   for  the   schools   to  re- 
solve a   continuing  problem  while  providing   the  Society  with  an 
opportunity  to   identify  Medichek-eligibles   and   enroll   them   in  the 
program . 


Exhibit  A-Contract  SRS ,  5 0 0-7 5 -0 0 3 0 -Depar tmen t  of  Health, 
Education   and  Welfare-June   30,  1975. 


(48) 


In   December,    1975,    the  model   outline  was  presented   to  and 
adopted   in  principle  by   the   School   Health  Advisory  Council.  A 
target  date  of   early  April,    1975,    was   approved   for  the  mass 
screening   clinic   to   allow   rime   to   develop   and   complete   the  neces- 
sary pre- screening   activities.      The  Will  County  Educational 
Service   Region  was   requested   to   provide   a   list  of   children  who  had 
not  completed  physicial   examinations   from  each   school   district  in 
the   county.      It   should  be   noted   that   this   list  did  not  identify 
Medichek-eligible   children   due   no   the   restrictive   problem  of 
confidentiality.      The   single   eligibility   criteria  was   the  absence 
of   a   completed  physical   examination  at   the   required  grade  level 
and   financial   inability  of   the   family   to  obtain   the  examination 
privately.      As   indicated   from  previous   experience,    the  majority 
of   eligible   children  were   students   of  Joliet   Grade   School  District 
86.      3y   the   end  of  January,    1976,    a  total   of   613   eligible  children 
were   identified  by  Joliet  Grade   School   District   86  was   an  estimated 
200   eligible   children  were   located   in  other   school   districts  of 
Will  County. 

To   accomplish   the  pre-screening  phase   of   the  model  outline, 
the  School  Health  Advisory  Council   approved  a   two   step  program 
in   January,  1976: 


Outr each-Thi s  phase   involved  visits   to   the   homes   of  eligible 
children  by  volunteer  outreach   teams.      Each   team  was  composed 
of   a  professional   outreach  worker   from  the   Joliet-Will  County 
Community  Action  Agency  and   student  nurses   from   the  St. 
Joseph  School  of  Nursing,    the  School   of  Nursing  of  Lewis 
University  and   the   School   of  Nursing  of  Joliet   Junior  College. 
It  was   the   responsibility  of   each  outreach   team  to  obtain 
written  parental   consent   for  participation   in   the  program 
and   to   complete   a  medical   history  on   each  eligible  child. 
Consent   forms   were   developed  with   staff  assistance   from  the 
American  Medical  Association.      Each  consent   form  contained 
space   to   allow  parents   to   identify   children  as  Medichek- 
eligible  and   to   authorize   completion  of   a  Medichek  examination 
through  the   school   screening  program.      Completion  of  this 
section  of  the   form  required   the  outreach   teams   to  present 
an   explanation  of   the  Medichek  program  to  parents   and  to 
explain   their   rights   of   freedom  of  choice   in  participating 
in   the  Medichek  program.      Local   project   staff   assumed  the 
responsibility   to   design   the   appropriate   consent   form  and  to 
gather   and  collate  other   educational  materials  presented  to 
parents   during   the  home   visits.      In  addition   to  patient- 
oriented  Medichek  pamphlets,    these  materials   included  infor- 
mation  from   the  Will   County  Health  Department  on  immunization 
clinics   and  Well-Baby  Clinics   and  program  materials   from  the 
Joliet-Will  County  Community  Action  Actencv. 


(49) 


Project   staff   arranged   and   conducted   three    training  sessions 
for   the  volunteer   outreach  workers   and   student   nurses   involved  in 
this   phase  of   the   program.      In  addition   to    informational  packets, 
these  training   sessions   included   detailed  discussions   of  the 
legislative   and  program  background   in  EPSDT,    the   involvement  of 
the  Will-Grundy  County  Medical  Society   in   the   local  demonstration 
project  and  the  overall  purpose   of   the   school   screening  program. 
Each  program  was   presented  with   the   assistance  of  a  physician  and 
public   health  n u r  s 6 s   of   tri  e  Will   County  Health  Department.  The 
sessions   were   conducted   at   the   St.    Joseph  School   of  Nursing,  for 
students   of  that   school   and   from   the   School   of  Nursing   at  Joliet 
Junior  College,    at   the   School   of  Nursing   at   Lewis   University  and 
at   the   offices   of   the  Joliet-Will   County  Community  Action  Agency. 

To   facilitate   the   actual   home   visits,    project   staff  developed 
visiting   schedules,    grouped  appointments  by  geographical   area  for 
each  outreach  team,    and  as  much  as   possible,    arranged  appointments 
in  advance  with   families   by   telephone.      The  master   list  of  eligible 
children   supplied  by   the   schools   was  used   in   coordinating  this 
activity.      In  addition,   project   staff  met  with  the  outreach  teams 
each  day  to  review  assignments,    discuss   problems   encountered  in 
day  to   day  activites   and  to   inspect   informational  packets  distrib- 
uted  to   the   teams   to   insure   the   packets  were   complete.      The  medical 
histories   collected  by   the  outreach   teams   were   reviewed  by  a 
physician  to  avoid   important  omissions,   whenever  possible.  Infor- 
mation recorded  on  daily  assignment   sheets   was   also   recorded  on  the 
master   school   list   for   later  use   in   followup  visits.      All  volunteers 
were  asked  to  work  at   least   three  hours   per   day  and   since  various 
groups  of  volunteers   were   available   at  different   times,    local  pro- 
ject  staff  assumed   responsibility   to   coordinate   outreach  workers 
and   student  nurses.      At   the   end  of   each  day,    the   records   of  Medichek- 
eligible   children  were   separated   from   the   overall  pool   and  project 
staff  completed   the   necessary  reporting   forms   for   the  State  of 
Illinois . 


Using  this  mechanism,    visits  were   completed  to   the  homes  of 
621   eligible   children   in   six   days,    from  February   9   to   11  and 
February   16   to   18.      At   the   end  of   the   second  week,   outreach  teams 
made  multiple   efforts   to   complete  previously  unsuccessful  home 
visits.      The  public   was  made   aware   of   the  program  through  infor- 
mational  releases    to   local   news  media  prior   to   the  beginning  of  the 
home  visits.      As   an   additional   service   of   the  program,  individual 
schools   were   notified   at   the   end   of   the    first   week   of   the  names 
of   children  dropped   from  the  program.      This   information  was  also 
made   available   to   the   office   of   the  Will  County  Educational  Service 
Region.      As  mentioned   earlier,    all   volunteers  were   asked   to  work 


( 50 ; 


at   least   three   hours  per  day   in   the   outreach  phase  but   in  fact, 
many  worked   far  beyond   that.      The   actual   number   of  volunteers 
was   relatively  small: 

Joliet-Will  County  Community  Action  Agency   -  21 

School   of  Nursing-Lewis  University  -  19 

St.    Joseph  School   of  Nursing  -  17 

Miscellaneous  -10 

Pershing   School  PTA 

Will-Grundy  County  Medical   Society  Auxiliary 
Pediatric   nurse  practitioner 
Friends   and   family  of  project  staff 

In  addition,    four   local  business   firms   and   a   community  agency 
donated  materials   and   suppies   used   in  the  outreach  phase. 

In   the   six  days   of   the   outreach  phase,   medical   histories  and 
parental   consent   forms  were   completed  on  a   total   of   299  children 
eligible   to  participate   in   the  program.      Project   staff  made  random 
home  visits  with   the  outreach   teams.      The   reception  of  families 
visited  was  positive  and   the   teams   reported  no  problems.  It 
should  be   noted  that   the   outreach  phase  of   the  program  was  charac- 
terized by  a   spirit  of  cooperation. 

b.        Pre-screening :      The  Will   County  Health  Department  assumed 
responsibility   for  completion  of   Phase   II,    or   the  pre- 
screening  portion  of   the   school   screening  program.  Pre- 
screening   services   included   TBN  testing,   urine  testing, 
blood   testing   and   immunizations.      During   the  month  of  March, 
1976,    teams   of  Joliet   school   nurses   and  public   health  nurses 
from  the  Will   County  Health  Department,    accompanied  by  pro- 
ject  staff,    visited   individual   schools   in  Joliet  Grade  School 
District   86.      Specimens  were   analized  by  the   laboratory  at 
the  Will   County  Health  Department,    at  no   cost,    and   the  re- 
sults were  distributed   to   schools   for   attachment   to  each 
child's   individual   health  record.    Three  days  following 
administration  of   the   T3Ns ,    school   nurses   read   the  casts 
and   reported   the   results   on   the  health  records   which  would 
accompany   each   child   to    the   mass    clinic    in   April.      In  a 
separate,    but  related  program,    the  Will  County  Health  De- 
partment  completed  dental   examinations   in   the   schools  and 
these   results  were  added   to   the   child's   individual  health 
record.      Standing  medical   orders   were   prepared  by   the  Will- 


(51) 


Grundy   County  Medical    Society   and   distriburad   to    the  necessary 
personnel   of   the  Will  County  Health  Department   and   school  nurses 
of  Joliet  Grade   School   District   86   in  advance  of   the  pre-scraening 
activities.      In   this  manner,    testing  and   immunizations  were  pro- 
vided  to   approximately   300   children   scheduled   to   attend   the  mass 
clinic   in  April. 

Since   the   School   Screening   Program  was   offered  to  all  school 
districts   in  Will   County,    project   staff   attempted   to  aileviata 
transportation  problems   for  districts   in  outlying   areas   by  ar- 
ranging  for   examinations   in  private  physicians   offices.  Since 
small   numbers  of   children  were   involved   in   each  of   these  districts, 
it  was   not  practical   to   apply   the   first   two  phases  of   the  program 
in  outlying  areas.      After   securing   the  agreement  of  physicians 
in   outlying  areas,    letters  were   sent   to   eligible   families  advising 
them  of   the  arrangements  made   for   their   children.  Informational 
materials   from  the  Will   County  Health  Department,    as  previously 
described,   were   included  with   these   letters.      A  total  of  35 
children  were   screened   in   this  manner   although,    since   there  were 
no   home   visits,    there  was   no  way   to  determine   how  many  were  Medi- 
chek-eligible . 

The  program  format  was   altered   from  the  model   outline  by 
the   School  Health  Advisory  Council  with   the  deletion  of  develop- 
mental  assessments   as   a   component  of   the   screening  program.  This 
decision   followed   consultation  with  officials   of  Joliet  Grade 
School   District   86  who   indicated   that  developmental  assessments 
were  being  made   through  other   school  programs.      In  providing  this 
information   to   the   School   Health  Advisory  Council,    the  school 
district  presented   a  brief   explanation  of   its   ongoing  programs: 

"The  Educational   Regional   Association    (S.R.A.)  provides 

disgnostic  and   supportive   educational   services   for   children  ages 

0-21.      Title  VI   federal   funds   are   applied   for   and  administered 
it 


"Among   the  goals  of   the   Title  VI   grant,    "Child  Find"  is 
emphasized.      Two  major   areas   of   concern   are   the   0-3   age  group  and 
the   high  school  dropout.      Assessment   techniques   used   to  determine 
the   functional   level   of   the   child   in   the   0-3   age   group  are  the 
"Learning  Accomplishment   File"   by  Chapel   Hill   Project   and  Educ- 
ational  Profile"   by   the   Peoria  Association   for   Retarded  Citizens 
0-3   Project.      These   were   compiled    from   selected  materials  by 
authorities   recognized   in   the   field  of   child  development.  Por- 
tions of   the   Denver   Developmental   test  are   incorporated   in  the 
above   tests.      After   this   assessmnet   is  made,   many   children  ara 


(52) 


then  referred   for   educational   evaluation,    speech   and  language 
evaluation   and   audiology.      If   further   evaluation   is  indicated, 
the   child   is   referred   to   the   nurse   to   review  current  physical 
appraisal   and   to   obtain  a   complete  medical   and  developmental 
history  and   to   the  psychologist   for  psychological  evaluation." 

"Preschool   screening   is   available   for   every  child  in 
District   86  between   the   ages   of   3   and   5.      The  DIAL  screening 
device   is   used  as   it  quickly   assesses   four   areas   of  developement : 
Fine  Motor,   Gross   Meter,    Concepts   and   Speech  and  Language.  Norms 
were   established  on   the   DIAL  Screening  device  on  a   large  cross 
cultured   sample ....  Children   failing   the   screening  are  referred 
for   further  diagnostic   evaluation   for   individualized  help  or 
program . " 

"Children   entering  kindergarten  or   in   school  who  function 
below  expected   achievement,    who   exhibit   lack  of  perception  in 
learning  concepts,   who   are  withdrawn,    or  display   lack  of  self- 
control   are  referred   to   the   case   action  team    (psychologist,  nurse, 
speech  therapist  and   social  worker) for   appropriate  evaluation." 

"No  children   are  placed   in   learning  disability,  education- 
ally handicapped  or  emotionally  disturbed  programs  without 
psychological s . "  29 

In  mid-March,    1976,    the   School  Health  Advisory  Council  met 
to   review  the   results   of   the  Outreach  phase  of   the  program  and 
to   finalize  plans   for   the  mass   screening  clinic.      Final  plans  for 
clinic   routing,    transportation   schedules,    needed  voluntary  personnel 
and   equiment   as   developed  by  project   staff  were   reviewed  and 
approved  at   this  meeting.      Plans   for   a   final   training   session  for 
volunteers  were   finalized  and   informational  packets  prepared. 
Instructional  materials  were  developed  by   the  office  of   the  Will 
County  Educational   Service  Region   and   the   Director  of  Nursing  at 
the  Will  County  Health  Department  outlining   final  plans  and 
responsibilities  of  participating   individual   schools.      A  letter 
requesting  volunteer   support  was   sent   to   each  member   of   the  Will- 
Grundy  County  Medical  Society   and   a  physician   schedule  was  de- 
veloped  from   the   responses.      Supplies   and   equipment   for   the  pro- 
gram were  donated   or   loaned  by   St.    Joseph  Hospital,    Silver  Cross 


Vivian   Johnson,    R.N.,    M.S.,    Teacher-Nurse   Consultant,  Joliet 
Grade   School   District   86,    letter   to  Guy  A.    Pandola,  M.D., 
dated   January   14,  1976. 


(53) 


Hospital/    St.    Joseph  School   of  Nursiig,    Professional  Medical 
Surgical  Supply  Company  and  other   local   businesses.      More  than 
150  volunteers   were   enlisted   for   the   clinic  representing: 

School  of  Nursing   -   Lewis  University 

School  of  Nursing   -   Joliet   Junior  College 

Will  County  Dental  Society 

Will  County  Dental   Society  Auxiliary 

Will-Grundy  County  Medical  Society 

Will-Grundy  County  Medical   Society  Auxiliary 

Non-project   staff -Will-Grundy  County  Medical  Society 

Joliet-Will   County  Community  Action  Agency 

Will  County  Health  Department 

Staff  members   -  Quad   River  Foundation   for  Medical  Care 

School  Nurses   -   Joliet  Grade   School   District  86 

As   can  be   expected   in  a  mass  program  of   this   nature,    the  actual 
operation  of   the   clinic   was   hampered  by  unexpected   events.  For 
example,    to   avoid   lengthy  delays   and  congestion   at   the  clinic 
site,    one   of   the  most   serious  problems   of   the   1975  program,  the 
arrival   of  buses   from  Joliet  Grade   School   District  86  was  carefully 
coordinated  to  provide   a   steady   flow  of  children  through   the  clinic. 
The   arrival   schedule  was   designed   to   cover  most  of   the  children 
attending   the   clinic   and  was   communicated   to   individual  schools 
through   the  District  administration  which  was   responsible   for  trans- 
portation.     The   schedule  was   interrupted  at   the   beginning  when  the 
first  bus  was   involved   in   a  minor   traffic   accident   enroute   to  the 
clinic   site.      The  problem  was   compounded  when   the   second  arrival 
was   late.      Both  buses   arrived   at   the   clinic   site   near  midday  with 
a   total   of   128   children.      With  other  buses   arriving  on  schedule, 
a  backlog   soon  developed   in   the  clinic. 

Since   the   transportation   schedule   had   been   carefully  arranged, 
volunteer   time  was   arranged  on  the   same   basis.      It  was  anticipated 
that   the  majority  of  physical   examinations  would  be  completed 
during   the  morning   session  of   the   clinic,    so   the  majority  of 
volunteers  were   at   the   clinic   site   during   that   time.      As   a  result 


(54) 


of   the   breakdown   in   the   arrival   schedule,   many  volunteers  had 
little   to   do   during   the   early  hours   of   the   clinic.      When  the 
majority  of  children  arrived,   many  volunteers   had  departed. 
This  was  particularly  critical   with  physician  volunteers  since 
they  were   enlisted   for   specific   time  periods   and  many  had  other 
commitments.      Most  of   the  physician  volunteers   had  departed  when 
the  majority  of  children   arrived   and   in   addition,  several 
physicians   scheduled   in   the   afternoon  hours,    failed   to  appear. 
Despite   the  problems  which  overloaded   the  program  mechanism,  a 
total   amount   of   370   screenings  were   completed.    Approximately  80 
children  were   returned   to   their   school  without  examinations. 
These   examinations  were   completed   in   a   follow-up   clinic   at   a  local 
grade   school   during  May. 

In  all,    a   total  of   485   examinations  were   completed   at  the 
major  and   follow-up   clinics,    and   through  physicians  private 
offices   encompassing   all   schoool  districts   in  Will  County  in- 
cluding parochial   schools.      Of   these,    174   were   identified  as 
Medichek-eligible ,    a   significant   increase  over   the   1975  program. 
Medichek  records  were   completed   and   forwarded   to   the  Illinois 
Department  of  Public  Health   for   inclusion   in   the  program.  Arrange 
ments  were  made   for   school   nurses   and  public   health  nurses  to 
contact   the   families   of  children  with   identified   conditions  re- 
quiring  follow-up  diagnosis   or   treatment  with   individual  referrals 
to  be  arranged   through   the  Will-Grundy  County  Medical  Society. 
At   the   close  of   the   demonstration  project,    no   referrals   had  been 
received . 

The   1976   School   Screening  Program  was   the  most  valuable, 
effective   and   instructive   component  of   the   demonstration  project. 
The  adoption  of  the  model  outline,    authored   from   the  experiences 
of   the   1975  program,    and   the   addition  of   the  outreach  and  ore- 
screening  phases   of   the  program  developed   from   that  outline  made 
the   second  program  far   superior   to   the   original.      With  the  com- 
pletion of  medical   histories   and   the   results   of  pre-screening 
tests   available,    the  physical   assessments  were  more   complete  and 
comprehensive   than   in   the   1975  program.      It   is   our  opinion  that 
the   basic  mechanism  of   the  program   as   developed   this   year   is  sound 
and  provides   opportunities   for   further   refinement  and  develop- 
ment.     The  only  program  element  deleted   this   year  was  develop- 
mental  assessment  which  was   disappointing   since  we   regarded  it 
as   an   important  component  of   a  comprehensive  assessment. 


The   1976  program  again   successfully  demonstrated   the  cooperation 
and   support  of  many   segments   of   the  business  and  professional 
communites  and   through   the  outreach  phase,    provided  an  educational 
opportunity   for  nursing   students   not  otherwise   available   to  them. 
Both  St. Joseph  School  of  Nursing   and   The  School   of  Nursing  at 
Lewis  University  have   indicated   their   interest   in  continuing  the 
participation  of   their   students   in  a   future  program. 

A  major  key   to   the   success   of   the  program   is   the  supportive 
involvement   and  cooperation  of   local   schools   which  provided  a 
means   to   partially  overcome   the  problems   of   confidentiality  in 
idenuifing  Medichek-eligible   children.      While   this   is   not   the  best 
answer   to   the   confidentiality  problem,    it   is   the   best  one  discovered 
in   this  project.      Although  a   significantly  higher  number  of  Medichek- 
eligibles  were   identified   in   the   1976  program,    it   is  reasonable 
to   assume   that   an  unknown  number   of  Medichek-eligible  children 
were  not   identified   if  parents  chose   not  to   identify  them  during 
the  outreach  phase   of   the  program.      In  considering   that  statement, 
it  must  be   remembered  that  all   children  who  participated   in  the 
program  had  been  previously   identified   as   financially  unable  to 
obtain   them  privately  and   it   is   reasonable   to   conclude   that  a 
higher  number  of   them  were  members   of   recipient   families   of  the 
Illinois   Department  of  Public  Aid  than  were   identified.      This  is 
a   situation  which  will   continue   to   exist  until   the  overall  problem 
of   confidentiality   is   resolved  at  a  higher   level   than  this  project. 

We  have   learned   from  the   1976  program   that   a   single  mass 
screening   is   not   the  most   efficient  means   to   deliver   the   services  of 
the  program.      The  problems   of   transportation,    delays   at   the  clinic 
site   through  overcrowding  or  delays   in   clerical  work   can   be  expected 
to   repeat  themselves   and  we  must   state   again   the   position  of  the 
Society   that  mass   examinations   are   an  undesirable   and  inefficient 
method  of  preventive  health  care  delivery. 

We   believe  the  mechanism  can  be   altered   however   to  eliminate 
many  of   the  problems   associated  with  mass   screenings.      Since  a 
program  of  this   type  would   not  be  possible   without   the  involvement 
of   the   schools,   we  would   suggest  developing  the   program  on  a  con- 
tinuing basis   throughout   the   school  year.      Using   the   same  outreach 
and  pre-screening   technique   on  a  month   to  month  basis,  smaller 
number  of   children  would  be   examined   at   each  encounter.  This 
would  eliminate   the   need   for   a   single  mass  program  and  increase 
the  possibility  of   completing   the    examinations    in   a  private 
physician's  office.      We   believe   this   approach  would  be  more  accept- 
able  to   individual  physicians.      Since   the   schools  would  be  so 


closely  involved   in   a   continuing  program,    the  adminsistrative 
organization  of   the  program   should  become   a   responsibility  of  the 
schools   at  a   county   level.      The   role   of   a  medical   society  should 
be   advisory   since   a  majority  of   county  medical   societies   do  not 
have   the   staff  resources   available   to   effectively  organize  and 
implement  a  program  of   this   nature.      The  Will-Grundy  County  Medical 
Society  would   not  have  been  able   to  make   the   1975   screening  pro- 
grams available  without   the   resources   provided  by   the  Department 
of  Health,   Education  and  Welfare   through   the   local  demonstration 
pro  j  ec t . 

Another  possibility  would  be   to   organize   and  administer  a 
continuing   screening  program   through  a   local   community  action  agency. 
As   is   the   case  with  the   schools,    adequate   staff   resources   would  be 
available   and  both   entities   can   readily   identify   the   target  pop- 
ulation.     A  community   action   agency  has   the   added  advantage  of 
employing  professional   outreach  staff   to   carry  out  the   first  phase 
of   the  program.      In   either   instance,    the   role  of  a   local  medical 
society   should  be   limited   to  providing  medical   expertise   and  man- 
power and   to   arranging   for  physician  volunteers   to  participate  in 
the  program  and   to  utilize   existing   referral   patterns   for  additional 
diagnosis   and   treatment  of   identified  abnormal  findings. 

In   terms  of   the  overall   EPSDT  program,    the  use  of  school 
screenings   in  any   form  has   two  major  weaknesses.      The  program  pro- 
vides no  mechanism   for   continuing  care   for   the   children  involved 
since  the   physician  performing   the   screening  may  not   see  the 
child  until   the   next   school-required  examination   several  years 
later.      This  would  affect  the  majority  of  EPSDT-eligibles   in  whom 
no   abnormal   conditions   are   identified.      The  program  also  provides 
no  mechanism  to   identify  and   enroll   infants   and  pre-school  children 
in  EPSDT.      As  operated   in   the   demonstration  program,    a  physician 
would  not   see   an     EPSDT-eligible   child  until   five  years   of  age 
losing  the  most   formative  period  of   the   child's   life.    The  obvious 
conclusion   is   that   such  a  weakness   does   not  provide  optimum  pre- 
ventive  health  care  delivery.      We   can  conclude   then  by   saying  that 
the   school   screening  program  did   enable  us   to   identify  one  method 
of   addressing   the  problem  of   confidentiality  and   to  make  EPSDT 
services   available   to   a   larger  number  of   children.      While  we 
believe   the  program  does   not  provide   solutions   to  many   issues,  it 
is   reproducible   in   other  areas.      The  program  does   have  possibilities 
for   further  refinement   and   development   and   if  administered  by  the 
agency,    the    schools   or   a   community   action   agency   with    the  support 
of   a   local  medical   society,    can  make   EPSDT   services   available  to 
a  greater   number  of   children.      At   the   close   of   the   current  project, 
we   can  make  no   statement  on   the   local   future  of   the  program. 


( 57 } 


The   school   screening  program  has   been   conducted   for   two  years 
locally  using   the   resources   provided  under   this   contract  and  no 
agency  has   stepped   forward   to   continue   the  program.      We  have 
advised   the  School   Health  Advisory  Council   that  while   the  Will- 
Grundy  County  Medical   Society  will   not  have   the   resources  to 
administer  another  program,    we  will  participate   again  under  the 
sponsorship  of  another  agency. 


(53) 


EPSDT    -    ONGOING  ACTIVITIES 


In  order   to   assimilate   data   from  Medichek  and  Medicaid  claim 
forms,    a  record  keeping   system  developed  by  project   staff  during 
the   1974-75   subcontract  period  was  maintained   throughout   the  1975- 
75   contract  period.      This   system  enabled  project   staff   to  monitor 
the   level   of  delivery  of   services   in  private  office   settings  and 
provided   the   additional   benefit  of   a   claim  review  system  for 
physicians  of   the  Will-Grundy  County  Medical  Society. 

Physicians  were   requested   to   submit  Medichek   claim  forms  to 
the  project  office   rather  than  directly  to   the   Illinois  Department 
of   Public  Health   for  payment.      Due   to   the  complicated   nature  of 
the   form,    a   clerical   review  was   completed   to   correct  any  errors 
or  omissions.      When   errors  were   located,    they  were   corrected  with 
the  assistance  of   the   submitting  office.      Two   copies  were   then  made 
of   the   form  and   the  original  was   submitted   to   the   Illinois  Depart- 
ment of  Public  Health   in   Springfield   for  payment  directly   to  the 
provider . 

The   copies  of   each   form  were  used   to   initiate  records  and 
referrals   as  follows: 

a.  An  abnormal   follow-up   report  was   initiated   from  all  claim 
forms  which   identified  an  abnormal   condition  requiring 
follow-up  treatment  or   referral.      The   report   included  the 
case   name,    child's   name,    case   number,    child's  birthdate, 
date  of   the   examination,    examining  physician  and   the  nature 
of   the  abnormality   identified.      This   information  was  trans- 
mitted  to   the   agency  responsible   for   follow-up,    in   the  pro- 
ject  area,    the  Will  County  Department  of   Public   Aid.  The 
report  contains   space   for  Public   Aid  personnel   to  record 
case   findings   during   follow-up   contacts.      A   copy  of  the 
report  documenting   follow-up  contact  was  kept  by   the  Will 
County  Department  of  Public   Aid  and  the  other  was  returned 
to   the  project  office. 

b.  In   addition,    an    internal   control    form   was   used    to  document 
and   control   the:    a.)    age   and  date   of   a   child's  enrollment 
in   the  Medichek  program,    b.)    for   use   in   setting  controls 
to  maintain   the   program's   schedule  of   visits,    and   c.)  a 
family   history    file   copy   for   use    in   recording   all  Medichek 
screenings   and   contacts  made  by  the  project  with   the  family. 
The   enrollment   file  was   checked  upon   receipt  of   the  claim 
form.      If   the  claim   form  represented   an   initial  screening, 
the    internal    control    form  was    initiated.      The    enrollment  file 
was   undated  icon   the   completion  of   each   scheduled  visit. 


This   review   system  was   designed  to   increase   the  effective- 
ness of   the   local  project   in   several   areas.      The   system  attempted 
to   assist  physicians  with  billing  problems   and   to   avoid  delays 
in  payment  through   errors   in   claim   form  completion.  Throughout 
the  duration  of   this  project,   delays   in  payment   to  physicians  was, 
and   remains   a   serious   and  unresolved  problem.      The  prior  claim 
review  system  used   in   the  project  had   no   impact  on   this  continuing 
source  of  physician   frustration.      The   use  of  an   abnormal  report 
form  did  enable   the  project  office   to   speed   up   the   referral  process 
and   to  prevent  children   from  becoming   lost   in  the  bureaucratic 
process   however   the   system  was   adversely  effected  by   the  internal 
personnel   difficulties   of   the   Will   County  Department  of  Public  Aid 
as   discussed    earlier   in   this  report. 

A  weakness   in   the  data  gathering  and   control   process  developed 
during   the   1975-76   contract  period   because   of   the   voluntary  nature 
of  the  program.      When   the   system  was  designed,    it  was   based  upon 
physician  participation   in   the   rotation   system.      Since  project  staff 
coordinated   the   assignment  of  patients   to  physicians   under  the 
rotation  program,    the   system  was   better  able   to  monitor   the  number 
of  visits   and   track  follow-up. 

With  the   cancellation  of   the  physician  rotation  program  late 
in   the   1975   subcontract  period,   project   staff  was   removed  from 
direct  participation  with  physicians  and  patients.      Since  project 
staff  was   no   longer  able   to   assist  patients  with   scheduling  of 
appointments,    the   level   of  direct   contact  with  patients  declined 
throughout  the   1975-76  period.      Without   the  rotation  program, 
physician  participation   in   the  Medichek  project  was  completely 
voluntary  and  while  physicians  were   encouraged   to   submit  Medichek 
claim  forms   through   the  project  office,    and   it  appears   that  the 
majority  did   so,    there  was   no   established   control   on  which  to  base 
evaluation  of  data.      It  cannot   then  be   said   that  all  physicians 
participating   in   the  Medichek  program  utilized   the   services  of 
the   local  project. 

The  Tables  which   follow  in   this   report  represent  the  accum- 
ulation of  data   from  the   system  described   for   the  duration  of  the 
project   from  March,    1974  until   June,    1976.      It   should  be  noted 
that   significant   trends   cannot  be   identified   from  the   tables.  The 
figures   involved  are   too   small   and   the   time  period   is   not   of  suf- 
ficient  length   to   draw  conclusions. 

Table  I  represents  the  total  number  of  Medichek  screenings 
by  month  for  the  period  of  March,  1974  to  April,  1976,  reported 
to   the  project  office  by   submission  of  claim   forms.      The  Scheduled 


Visits   column  represents    the   number  of   screenings   performed  in 
accordance  with  the  mandated   schedule   of   the   Illinois  Department 
of  Public   Health.      The   Scheduled  Visits   are  permitted  at   5  weeks, 
4  months,    6  months,    9  months,    12  months,    18   months,    2  years, 
3   years,    4   years,    5   years,    6  years,    10  years,    14   years,    and  17 
years   of   age.      The   column   labeled  Unscheduled  Visits  represents 
those   screenings   reported   to   the  project  officer  performed   at  other 
times   than  allowed   in   the  Medichek  Program.    Table   II    is   a  break- 
down by  month  and   age   over   the   duration  of   the  project. 


(61) 


TOTAL   VISITS    3Y  MONTH 


TABLE  I 


SCHEDULED  VISITS 


UNSCHEDULED  VISITS 


MARCH  197  4 

APRIL  1974 

MAY  1974 

JUNE  1974 


25 
33 
39 
54 


0 
5 
5 
6 


TOTAL' 


156 


TOTAL  VISITS 


172 


JULY 

1974 

68 

17 

AUGUST 

1974 

129 

15 

SEPTEMBER 

1974 

82 

7 

OCTOBER 

1974 

112 

12 

NOVEMBER 

1974 

85 

25 

DECEMBER 

1974 

49 

AVERAGE  VISITS 

12 

JANUARY 

1975 

81 

PER   MONTH    96 . 5 

8 

FEBRUARY 

1975 

66 

3 

MARCH 

1975 

73 

9 

APRIL 

1975 

108 

3 

MAY 

1975 

36 

17 

JUNE 

1975 

114 

13 

TOTAL  - 

1058 

151 

AVERAGE  VISITS 
PER   MONTH    12 . 6 


TOTAL  VISITS 


1209 


JULY  1975  38  5 

AUGUST  1975  97  10 

SEPTEMBER  1975  111  AVERAGE   VISITS        16               AVERAGE  VISITS 

OCTOBER  1975  23  PER   MONTH   73.6      50               PER   MONTH  10.7 

NOVEMBER  197  5  4  5  9 

DECEMBER  19" 5  54  5 


(62) 


TOTAL   VISITS    BY  MONTH 


SCHEDULED 

VISITS 

UNSCHEDULED 

JANUARY 

1976 

41 

6 

FEBRUARY 

1976 

19 

2 

MARCH 

1976 

9 

4 

APRIL 

1976 

174 

TOTAL** 

736 

107 

TOTAL  VISITS 


*If   extended   for   12  month  period   the   total   scheduled  visits 
would  be   468  with  60  unscheduled  visits.      Since   the  Will-Grundy 
County  Medical  Society   had   just  begun   formal  participation  in 
the  Medichek  Program,    and   the  Program  had  received  minimal 
emphasis   among  member  physicians,    the   extended   figures  are 
reasonable  assumptions   of   the   level   of   screening   for   12  months 
without   the   impact  of   the   local  demonstration  project. 

**   Figures   for  May   and   June,    1976   not   available.      Using  an 
average   of   73   scheduled  visits  per  month,    the  projected  total 
for  the   1975-76   contract  period  would  be   S82.      Using   an  average 
of   10  unscheduled   visits     per  month  the  projected   total   for  the 
1975-76   contract  period  would  be   137.      The  projected   total  visits 
would  be   1019   for   the   final   contract  period. 


Some   explanatory   notes    from  Table  I: 


--The  total  of   Scheduled  Visits   for   the  months   of  April,    1975  and 
April,    1976   are   artificially  high  because   of   the  number  of 
Medichek   screenings  performed   in   the   school   screening  program 
in  both  years.      The  majority  of   screenings   in   these  months  fell 
into   the   5,    5,    and   10   year  age  groups. 

--The  peak   screening  months    for   both   contract  periods  were  June, 
August,    September   and  October.      The   higher   total   screenings  of 
these  months   probably  reflects   the   number  of   school  physicals 
being  performed   in  private   office   settings   and  reported  through 
the  Medichek  project  office. 

--The  decline   in   the  average   of   scheduled  visits  per  month  between 
the   first   and   second   contract  periods   is   the   result  of   a  combin- 
ation of   factors.      The   return   of  participation   in   the  Medichek 
project  to   voluntary   status   following   cancellation  of   the  ro- 
tation program,    the  growing  frustration  of  physicians  with 
bureaucratic   difficulties  with   the   Illinois   Department  of  Public 
Aid  and   Illinois   Department  of   Public   Health  are   reflected  in 
this   decline.      The   sharp  decline   in   screenings,    exclusive  of 
the   school   screening  program   in   1976,    reflects   physician  aware- 
ness of   the   impending  termination  of   the   local  demonstration 
pro  j  ec t . 

--Outside   the   peak  months,    the  variance   in  monthly  totals   may  be 
attributed   to  periods  when   the   Medichek  program  received 
publicity  either  publicly  or   internally   in   the  Will-Grundy 
County  Medical  Society. 

--The   relatively  consistent  numbers   of  screenings    throughout  the 
contract  period   indicate   the   local  demonstration  project  did 
have   an   impact  on   the   delivery  of  EPSDT   services   in   the  private 
sector.      However,    the   fact   that   the   number  of   screenings  did 
not   increase   through  the   two  year  period,    in   fact  declined 
slightly   suggests   the  program  was  maintained  more   through  the 
good  will   toward   the   Society  on   the   part  of   individual  physicians 
than  through  acceptance  of   the   Medichek  program. 


(64; 


TABLE  II 


MARCH    1974-  JULY    1974-  JULY    1975  TOTALS 

JUNE      1974  JUNE    1975  JUNE  1976* 


6 

'Jasks 

"1  Q 

7  0 

4  6 

13  5 

4 

Months 

1 8 

39 

54 

161 

O 

Months 

1  4 

"7  n 

i  9 

8  6 

17  9 

9 

Months 

1  3 

5  a 

43 

119 

12 

Months 

21 

63 

42 

131 

18 

Months 

3 

68 

32 

103 

2 

Year 

6 

61 

19 

86 

3 

Year 

6 

39 

28 

73 

4 

Year 

9 

55 

19 

83 

5 

Year 

6 

65 

49 

120 

6 

Year 

2 

65 

12 

79 

10 

Year 

10 

103 

42 

155 

14 

Year 

12 

34 

18 

114 

17 

Year 

1 

8 

5 

14 

Unscheduled 

Visits  16  161  107  284 


*Figures   from  School   Screening   Program,   April,    1975,    not  availab 
for  inclusion. 


(55) 


SOME    EXPLANATORY    NOTES    FROM    TA3LE  II 


The   impact  of   the   Society's  physician-patient  rotation  pro- 
gram is  most   clearly   illustrated   in  Table   II.      The   figures   in  all 
age   groups   are  higher  during   the   1974-75   subcontract  period  when 
the   rotation   system  was   in   full   operation.      The   figures   for  the 
1375-76   contract  period   indicate   the   effect  of   the  cancellation 
of   the   rotation  program  on   the  demonstration  project. 

Table   II   also  would   seem   to   indicate   that   the  EPSDT  program 
does   not  reach  the   top   age  groups   although  the  project  period 
was   too   brief  to   draw  a   firm  conclusion. 

The  high  number  of  unscheduled  visits    (screenings  reported 
which  do  not   fall  within   the  mandated   schedule   by  the  Illinois 
Department  of  Public  Health)    would   seem  to   indicate   a   lack  of 
knowledge   of   the  program  on   the  part  of   the  parents.      It  should 
also  be   remembered  that   the   figures   for   the   5,    6,    and   10  year 
age   groups,   particularly   in   the   1974-75   subcontract  period  are 
artificially  high  due   to  the   school   screening  program.  Figures 
from  the   1976   school   screening  program  were   not   available  as 
records  were   not  returned   to   the  project   from  the   schools  in 
time   for   inclusion   in   this  report. 


(56) 


CONCLUSION 


As   we  reach   the   conclusion  of   the  EPSDT/Medichek-Community 
Health  Services  project,   we   do   not   find    ourselves   in  a  position  to 
make   recommendations   for  development  of   the  EPSDT  program.  Our 
recommendations  have  been   repeatedly  made;    in  Professional  Health 
Provider   Participation,    EPSDT-Medicaid  1974-75,    in   testimony  to 
the  Legislative  Advisory  Committee   on   Public  Aid  of   the  Illinois 
General   Assembly   and   in  our  monthly  reports   in   the  present  con- 
tract year.      We  have   repeatedly  pointed  out   that   there   has  been 
no   substantial  change   in   either   the  problems   or   the  recommend- 
ations  in   the  EPSDT-Medichek  program   since   our   initial  involve- 
ment and   since  our  involvement   in   the   1975-76  demonstration 
project  was   a   further   attempt   to  address   these   issues,    we  believe 
it  would   serve   little  purpose   to   repeat  the   litany  here.   We  can, 
however,   make   some  observations   on  our  experiences. 

It   has   been   frustrating  and   annoying   to   attempt   to  meet 
the  goals   of   this  project  while  working   in  good   faith  against 
a  background  of   governmental  mistrust  and  apathy.      It   is  obvious 
from  our  previous   documentation   that  we   have  been  unable   to  engage 
the   interest  of  the   Illinois   Department  of  Public  Aid  or  the 
Illinois   Department  of  Public   Health   in  addressing  matters  of 
concern   to  physicians.      It   is   equally  obvious   that   internal  staff 
problems,    at   both   the   regional   and  central   offices  of   the  Depart- 
ment of  Health,    Education  and  Welfare,    severely  restricted  the 
availability  of  technical  assistance   to   the   local  project.  These 
problems,    of  which  we  were   only   indirectly   aware,  sufficiently 
interrupted   the   free   exchange   of   information   to   a  point  where 
our  project  operated   in  a  near  vacuum  for  most  of   the  contract 
period . 

It   is  unfortunate   that  we  were   forced   to   lose  nearly  a 
quarter  of  the   contract  period  resolving  administrative  difficult- 
ies with  the  payment  mechanism  which  required  rearranging  the 
scope  of  work  of   the   contract.      We   accomplished   that   task  while 
simultaneously  attempting   to  operate   the  project  however  we 
believe   the  difficulties   could   have   been  resolved   to   a  much  shorter 
time   had   assistance  been  available. 

We  would  point  out   that   a   considerable   number  of  volunteer 
physician  manpower  were  provided   to   this  project   in  administrative 
and  policy  areas.      It  was  our   feeling   that   the  project  was  impor- 
tant enough   to   justify   the  donation  of   this   time   in   the  beginning. 


(57) 


A3   our   frustration   at   the   lack  of  program  progress   and  develop- 
ment  increased,   physician   involvement  was  maintained  only  in 
a   commitment   to  discharge   an  obligation.      We  are  appreciative 
of   the   support  of   the  Will-Grundy  County  Medical   Society  in 
completing  this  project  under  adverse  conditions. 

We   find   the   outcome  of   this   project  both  disappointing  and 
ironic.      Having  directly   initiated  development  of  a  Professional 
Standards   Review  Organization   and   a  Health   Systems  Agency   in  our 
area,    and  having  been   successful   in  both   endeavors,   we   are  not 
inexperienced   in   government   funded  health  programs.      We  did  not 
find   the   same   level  of   support  and   cooperation   in  the  ZPSDT 
project  as  characterised   the  other  projects.      The  problems  en- 
countered  in   the  EPSDT  project  are  more  puzzling  when  examined 
against   the  viewpoint  of  M.    Keith  Weikel,    Ph.D.,  Commissioner, 
Medical   Services  Administration,    in  discussion   implementation  of 
EPSDT . 

"Together,   we   have   the  power   to  master,    rather   than  be 
mastered  by,    the   so-called  revolution   in  health   care.      The  rising 
expectations   of  our  people   can  be  met   through  an  exertion  of 
reason   and  control.      But   to  do   this,   we  must  believe   in  our  powers, 
agree  among  ourselves,    and   then  work   together   as  we  have  never 
done  before."  30 


M .    Keith  Weikel,   Ph.D.,   Address   to   the  Annual  Meeting  of  the 

American  Academy  of   Pediatrics,   Washington   D.C.,   October  22, 


ATTACHMENT  A 


COMMUNITY  HEALTH  3EE7TCSS  PROGRAM 


NOVEMBER,  1975 


Prepared  by  the  Will-Grundy  County  Medical  Society  and  the  Will- 
Grundy-Kankakee  Comprehensive  Health  Planning  Council  in  cooperation 
with: 


St.  Joseph  Hospital 
Silver  Cross  Hospital 

Joliet-Will  County  Conmrunity  Action  Agency 
Will  County  Department  of  Public  Health 
Will  County  Department  of  Public  Aid 
Quad  River  Poundation  for  Medical  Care 


C  GMMUNT^Y"  STEERING  COMMITTEE  MEMBERS 


1.  JAMES  BARRTNGER,  CHAIRMAN 

WILL  COUNTY  PUBLIC  HEALTH  DEPARTMENT 

2.  BORIS  B ALTON,  EXECUTIVE  DIRECTOR 

JOLIET-WILL  COUNTY  COMMUNITY  ACTION  AGENCY 

3.  KEYTON  NIXON,  ADMINISTRATOR 

SILVER  CROSS  HOSPITAL 

k.    PRANK  0.  RANGER,  PHD. ,  EXECUTIVE  DIRECTOR 
WILL-GRUNDY-KANKAEEE    CHP  COUNCIL 

5.  DR.  ALBERT  RAY,  PRESIDENT 

WILL-GRTO1DY  COUNTY  MEDICAL  SOCIETY 

6.  ROBERT  SCHINDERLE,  ADMINISTRATOR 

ST.  JOSEPH  HOSPITAL 


STAFF:        RONALD  BRYANT,  PROJECT  DIRECTOR 

WILL-GRUNDY  COUNTY  MEDICAL  SOCIETY 

KEN  MARSHALL,  HEALTH  PLANNER 
WILL-GRUNDY-KANKAKEE      CHP  COUNCIL 


PAGE  NUMBERS 

INTRODUCTION  ,   1-3 

GOAL  STATEMENT   h 

PROBLEM  DEFINITION   5-3 

COMMUNITY  HEALTH  PROGRAM   9-11 

ALTERNATIVES   

PROGRAM  EVALUATION   


INTRODUCTION 


'■/ill  County,  one  of  the  most  rapidly  growing  areas  in  the  State  of  Illinois, 
covers  SkS  square  miles  in  the  northeastern  section  of  the  state.    The  county 
is  within  50  miles  of  Chicago  and  is  adjacent  to  the  counties  of  Cook,  DuPage, 
Kane,  Kendall,  Grundy  and  Kankakee  in  Illinois  and  Lake  County,  Indiana.  The 
population  of  Will  County  in  1970  was  21+9, i+98,  an  increase  of  30.2%  since  1960. 
Will  is  the  7th  largest  county  of  the  102  counties  in  Illinois  and  the  county's 
growth  rate  from  1 960  to  1970  was  exceeded  by  only  two  other  counties  in  the 
state.    The  population  pattern  for  the  entire  county  shews  an  11%  growth  rate 
from  1970  to  1973,  with  a  1973  census  of  278,060.    Much  of  Will  County  is  rural 
with  two  heavily  urbanised  areas,  located  in  the  northeastern  and  northwestern 
portions  of  the  county. 

•The  primary  service  area  of  the  Community  Health  Services  program  consists  of 
four  urbanized  townships,  Joliet,  Lockport,  Troy  and  DuPage,  located  in  the 
northwestern  quadrant  of  Will  County.    The  location  of  these  townships  is 
illustrated  in  EXHIBIT  A.    The  1970  population  of  the  primary  services  area 
was  160,960,  representing  6h°/o  of  the  entire  Will  County  population.    Two  town- 
ships of  the  primary  service  area,  DuPage  and  Troy,  were  areas  of  significant 
growth  from  i960  to  1970,  each  registering  a  more  than  30%  growth  rate.  The 
Village  of  Bolingbrook,  in  DuPage  Township,  has  experienced  the  sharpest  rate 
of  growth,  from  7»275  in  1970  to  25,519  in  1 97U-    The  primary  service  area 
also  encompasses  the  City  of  Joliet,  county  seat  and  the  largest  single  munici- 
pality in  the  county  with  a  1970  population  of  80,378.    Joliet  is  the  govern- 
mental, educational  and  cultural  center  of  the  primary  service  area. 

The  primary  service  area  is  inter-sected  by  two  federal  Inter-State  highways, 
and  is  served  by  five  transcontinental  highways  and  four  state  highways.  In 
addition,  the  area  is  served  by  six  railroads  and  four  inter-city  bus  lines. 
Local  mass  transportation-  is  provided  by  a  single  bus  line  which  operates  six 
days  per  week  in  three  of  the  four  townships  of  the  primary  service  area. 

Health  resources  include  176  physicians  in  solo  and  group  practices  in  Will 
County,  150  located  in  the  primary  service  area.    The  area  is  served  by  two 
general  hospitals  with  a  total  of  983  beds  offering  physical  therapy,  intensive 
and  cardiac  care,  psychiatric  care  and  accredited  schools  of  nursing,  medical 
technology  and  radiologic  technology.    Other  available  health  services  include 
twelve  long  term  care  institutions  with  79U  beds  and  91  dentists.    In  addition, 
the  Will  County  Health  Department,  headquartered  in  Joliet,  has  divisions  deal- 
ing with  Mental,  Dental  and  Environmental  Health,  health  education  and  nursing 
services.    The  department  also  provides  heme  and  school  health  services,  health 
counseling,  vision  and  hearing  screening  services  and  health  referrals. 

The  continued  pattern  of  rapid  growth  in  Will  County,  and  particularly  in  the 
primary  service  area,  have  taxed  the  capacity  of  existing  resources  to  meet 
the  ever- increasing  demand  for  health  services. 


One  effort  to  meet  this  increasing  need  was  the  development  of  a  physician 
rotation  program  by  the  Will-Grundy  County  Medical  Society  in  1971.  Prom 
1971  until  1 975 »  2,256  patients,  a  majority  of  them  public  aid  recipients, 
were  assigned  to  volunteer  physicians.     Of  that  number,  2,065  were  assigned 
during  one  year  as  a  result  of  increased  publicity  about  the  program.  The 
Medical  Society  was  forced  to  cancel  the  program  in  March,  1975  as  the  demand 
for  services  increased  and  voluntary  physician  participation  decreased.  In 
April,  1975?  the  Medical  Society  joined  a  number  of  other  community  agencies 
in  a  project  with  the  local  school  district  to  provide  state-required  physical 
examinations  for  several  hundred  children,  many  of  them  Medicaid-eligible. 

These  activities,  coupled  with  efforts  to  provide  services  in  the  Early 
Periodic  Screening,  Diagnosis  and  Treatment  program  in  solo  practice  settings, 
led  to  a  keener  awareness  of  the  needs  of  the  patient  relative  to  total  health, 
welfare  and  social  services  and  to  recognition  of  the  fact  that  private  physicians 
could  not  handle  those  needs  alone.    The  Medical  Society  recognized  the  fact  that 
the  entire  professional  community  must  assume  leadership  in  developing  accessi- 
bility to  the  health  care  system. 

Prior  to  the  cancellation  of  the  physician  rotation  program,  the  Will-Grundy 
County  Medical  Society  was  in  contact  with  various  community  agencies,  both 
providers  and  consumers  of  health  services,  to  discuss  possible  alternatives 
to  expanding  the  existing  health  delivery  system.    The  Community  Steering 
Committee,  as  identified  earlier,  was  formalized  as  a  result  of  these  dis- 
cussions. 

The  Community  Steering  Committee  has  met  regularly  for  a  period  of  six  months 
in  a  cooperative  effort  to  develop  the  elements  to  be  included  in  this  model 
Community  Health  Services  program. 


lanMMwaaMi  wm  meant***  rOTrirait^sa 


scale  ••  I  -  5  miles 


.1  „  «» ikia  t^nnrt  was  financed  In  part  through 
Z  rW«lnnment  under  .rovlslons  of  Sec.  701  ot  the 


Urban  Development  under  proviso 
Houston  Act  of  1934  k»  amended 


J 


GOALS  AND  OBJECTIVES 


One  of  the  primary  objectives  of  most  communities,  2nd  especially  of  our 
community,  is  to  assure  all  residents  access  to  the  health  care  delivery 
system.    The  development  of  a  Community  Health  Services  program,  assuring 
this  accessibility,  requires  the  cooperative  effort  of  many  facets  of  the  com- 
munity, which  must  include  but  not  be  limited  to  physicians,  hospitals,  allied 
health  agencies  and  social  agencies. 

The  primary  goal  of  this  program  shall  be  to  provide  high  quality,  comprehen- 
sive medical  and  related  health  and  social  services  which  are  economically 
available  and  accessible  to  the  residents  of  Will  County,  Illinois.  The 
initial  focus  of  this  program  will  be  directed  at  providing  additional  primary 
care  services  to  the  residents  of  Joliet,  Lockport,  Troy  and  DuPage  Townships 
who  are  now  experiencing  difficulty  in  obtaining  these  services.    While  the 
initial  scope  of  the  Community  Health  Services  program  is  restricted  to  the 
four  townships  in  the  northwestern  quadrant  of  the  county  because  of  the  high 
concentration  of  population  and  the  availability  of  existing  health  resources, 
the  services  of  the  program  in  the  future  will  be  available  to  all  residents 
of  Will  County.    It  is  anticipated  the  services  of  the  program  can  be  extended 
into  outlying  areas  of  Will  County  as  the  program  develops. 

To  attain  this  goal,  it  will  be  necessary  to  meet  the  following  objectives: 


A. 


To  provide  additional  primary  care  services 


B. 


Improve  the  continuity  and  quality  of  health  care  services 


0. 


0. 


Containment  of  cost  through  better  utilization  of  limited  and 
expensive  facilities  and  manpower  resources 

Preserve  and  improve  the  physician 'patient  relationship. 


PROBLEM  DEFINITION 


The  population  of  Will  County,  particularly  in  the  primary  service  area,  is 
confronted  with  a  number  of  barriers  to  adequate  health  care  services.  These 
barriers  are  particularly  acute  in  that  segment  of  the  population  of  low  and 
moderate  incomes  and  the  aged.    The  locally  identified  barriers  to  health 
services  are: 

A.  Unavailability  of  health  services 

The  number  of  physicians  in  the  areas  of  family  practice,  pediatrics,  internal 
medicine  and  obstetrics  has  steadily  declined  since  1961+-  Approximately, 
53  physicians  left  private  practice  in  Will  County  between  1964  and  1975*  U6  in 
the  above-mentioned  areas.    During  the  same  period,  67  physicians  established 
practices  in  the  area  but  only  26  in  primary  care,  some  in  part-time  practice, 
with  the  result  of  a  net  loss  of  22  1/2  primary  care  physicians.    During  the 
same  period,  the  population  of  the  county  has  increased  over  30%.    The  re- 
sulting overload  has  caused  many  physicians  to  restrict  the  size  of  their 
practices.    'These  restrictions  of  practices  resulted  in  an  increase  of  crisis- 
oriented  delivery  in  the  local  hospital  emergency  rooms  particularly  for  the 
low-income  segment  of  the  population. 

B.  Physician/patient  ratio 

The  ratio  of  primary  care  physicians  to  patients  in  the  primary  service  area 
is  1/3, 1+99 »  however,  physicians  geographically  located  within  the  primary 
service  area  do  not  restrict  their  practices  to  residents  of  that  area.  Most 
residents  of  rural  areas  of  Will  County  are  dependent  on  health  care  facilities 
within  the  primary  service  area,  thus  the  ratio  of  primary  care  physicians  to 
the  population  of  the  county  is  1/6,0U5«    Ln  addition,  the  medical  service 
area  for  these  same  physicians  includes  an  additional  100,000  people  from  ad- 
jacent surrounding  counties,  so  the  functional  primary  care  physician/patient 
ratio  is  1. 8,219. 

C.  Lack  of  education  of  the  general  public  in  health  matters 

This  barrier  is  evident  in  the  utilization  of  existing  health  resources,  a 
lack  of  understanding  of  the  value  of  preventive  medicine,  inability  to 
understand  and  follow  treatment  regimens  and  communication  gaps  between 
providers  and  recipients. 

D.  Lack  of  transportation 

There  is  no  regularly  scheduled,  convenient  public  transportation  available 
to  all  of  the  primary  service  area  and  few  facilities  exist  for  transportation 
of  the  aged  or  handicapped  or  others  unable  to  use  public  transportation. 
Public  transportation  is  available  only  in  the  immediate  environs  of  the  Cities 

of  Joliet,  Lockport  and  Rockdale,  during  daylight  hours,  six  days  per  week. 


_nad.eau.ate  dollar  income 


Many  citizens  of  low  and  moderate  incomes,  not  Public  Aid  clients,  are  finding 
the  increasing  costs  of  health  care  delivery  difficult  to  meet.    This  problem 
is  acute  among  the  aged  on  fixed  incomes. 

3F.    Inadequate  provider  re-imbursement 

The  use  of  a  fee  schedule,  rather  than  the  payment  of  usual  and  customary 
fees,  by  the  Illinois  Department  of  Public  Aid  and  the  lengthy  delays  in 
these  payments  and  other  administrative  difficulties,  combined  with  already 
heavy  patient  loads,  have  discouraged  physician  acceptance  of  IDPA  patients. 

These  locally  identified  barriers  to  health  services  serve  to  perpetuate  cycles 
of  illness,  limited  health  awareness  and  education,  and  poverty.    These  barriers 
particularly  frustrate  the  poor  and  alienate  them  in  their  relation  to  society. 
It  is  the  task  of  the  professional  health  and  health-related  communities  to 
involve  the  total  community  in  developing  a  mechanism  to  remove  these  barriers. 

With  this  in  mind,  the  following  demographic  information  on  the  primary  service 
area  was  considered: 

CHART  I 

How  many  people  live  in  these  four  townships  ? 


WILL  COUNTY 


U.S. CENSUS  ( 

1970 

JULY  1,  1973 

1970) 

%  65  & 

ESTIMATED 

TOWNSHIP 

TOTAL  POPULATION 

OVER 

TOTAL  POPULATION 

JOLIET 

96,001 

10.5 

9U,527 

DUPAGE 

20,001 

1.1* 

32,521 

LOCEPORT 

33,35V 

U.7 

36,73U 

TROY 

9,-95 

2.0 

12,151 

TOTAL  OP 

k  TWP. 

159,237 

175,933 

Will  County 

2U7, -25 

7-2 

27S, 060 

Illinois  State  11 

,113,976 

9.3 

11,176,356 

Source : 

U.S. 

Census 

it  has  been  determined  for  the 

purposes 

of  the 

Community  H 

ealth 

Services  program 

that  the  greatest 

potential  for 

•„se  of 

alterna 

system  exists  in  that 

ulation  with 

j  nconies 

of  |10,i 

D00  ter  year 

or  1 

ess.    'This  should 

not  oe  interpreted 

to  mean  that 

the  _ar 

vices  c 

tern  would  be  denied  to 

zzhes  residents  of 

'.va  j —  County 

*.v*no  exce 

ed  that 

as 5 ump o i on  zi  potential  use  1.3  rs-mi  crcsci  oy  the  ic,ct  that  3«2C5  P^^SliG  a-.d 
recipients  reside  within  the  primary  service  area,  representing  a  majority  of  public 
aid  clients  in  Will  County  and  whose  incomes  can  be  reasonably  estimated  to  fall 
under  310,000  per  year. 


CHART  II 

TOWNSHIP  1969  %  of  Families'  Earnings 


Less  than  37 » 000  -  Col.  1 

^7,000  o , 999  -j.  2 


LuPage  6.0  11+.1+  20.1+ 

Joliet  20.6  21.1  1+1-7 

LockDort  13-7  '9.5  33-2 

Troy  6.9  12.1+  19-3 


Source:    Northeastern  111.  Planning  Commission 
Suburban  Factbook,  1973,  Table  17 


Median  Income 
1970  


DuPage 
Joliet 
Lockport 
Troy 


312,630 
311,086 
311,658 
313,503 


Number  of  Number  of  families  with 
Families  children  13-  under  


2U,1S1+ 

7,150 
2,730 


3,711 
13,U39 
U,617 
2,036 


Source:    CHP,  INC.  Metropolitan  Chicago 


Number  of  Families  Below  310.000  in  1969 

901 
10,081+ 

2,373 
 £26  

 13,831+  

Source:      From  tables  above  (  #  of  Families 

from  CHP,  Inc.  and  Income  from  NIPC) 


Number  of  "persons  cer  household: 


Joliet  Twp.  3*12 

LuPage  1+.1+0 

Lockport  Twp.  3«51+ 

Troy  Twp.  3.87 

Will  County  3«U3 

State  of  Illinois  3«09 


LuPage 
Joliet 
Lockport 
Troy 


J. 3.  Census  Bureau  -  "970 


For  ice-mentation  purposes,  the  figure  of  3  persons  per  family  was  used  to 
calculate  the  following  information: 

1 3 » - CLl  families    i  3-0  persons  per  family    a  1+1  >  652  people 

This  represents  39%  of  the  population  of  the  primary  service  area  and  it  is 
reasonable  to  assume  that  this  segment  of  the  population  is  most  severely  ef- 
fected by  one  or  more  of  the  previously  identified  barriers  to  adequate  health 
care. 

The  demographic  information  presented  here  provides  a  reasonable  framework 
for  initial  planning  to  remove  these  barriers  to  the  delivery  of  health  care 
services.    The  Community  Steering  Committee  has  determined  its  course  of  action 
to  be: 


A.    To  identify  several  alternatives  for  community  consideration 

3.    To  develop  a  methodology  in  which  the  community  can  evaluate  and 
select  from  those  alternatives. 


T> (I'll i  ' — -  ->-£ vr n    ,"*n     >  -i^-.t>,tt~ i — rr>->r   Tr1  "  THTT    OO/VTJ  ITT 


Jhe  first  element  of  a  Community  Health  Program  is  the  development  of  a  Community 
Health  Council  which  should  draw  upon  the  common  knowledge,  experience  and  interest 
of  the  community ' s  health  care  providers,  civio  leaders  and  residents.    The  com- 
munity Health  Council  should  not  include  representatives  of  all  community  groups 
and  organisations  out  should  consist  of  a  representative  cross-section  of  the 
total  community.    A  categorical  breakdown  of  these  groups  could  be: 

A.  Froviders  of  health  services 

1 .  Health  professionals 
Will-Grundy  County  Medical  Society 
Will  County  Dental  Society 
Public  Health  nurses 

2.  Health  institutions 
St.  Joseph  Hospital 
Silver  Cross  Hospital 

Will  County  Health  Department 
Salem  Home 

Sunny  Hill  Nursing  Home 

3.  Voluntary  health  and  welfare  agencies 
Will  County  Unit,  American  Cancer  Society 
Easter  Seal  Rehabilitation  Center  of  Will  County 
American  Red  Cross,  Western  Will  County  Region 
Joliet-Will  County  Community  Action  Agency 
Will  County  Department  of  Public  Aid 

Illinois  Department  of  Children  and  Family  Services 

B.  Consumers  of  health  services 

1 .  Industry 

Will-Grundy  Manufacturers  Association 
Caterpillar  Tractor  Company 
United  States  Steel  Corporation 

2.  Business 

Joliet  Region  Chamber  of  Commerce 

3.  Non-health  professionals 
Will  County  Bar  Association 

U.    Farm  organisations 

Will  County  Farm  Bureau 

5.    Organized  labor 

Will  County  3uilding  Trades  Council 

International  Association  of  Machinists  and  Aerospace  Workers  Local      55 1 


6.  Religious  leaders 
Diocese  of  Joliet 

Joliet  Ministerial  Alliance 

7.  Educational  leaders 

q,     Will  County  Educational  Service  Region 
Joliet  Township  Hi^i  School  District  201+ 
Valleyview  School  District  365-U 

y.    Local  governmental  leaders 
Will  County 
City  of  Joliet 
Village  of  Romeoville 
City  of  lockport 
Village  of  Bolingbrook 

9.    Cooperative  extension  services 

Will  County  Home  Extension  Association 

University  of  Illinois  Cooperative  Extension  Service 


Representatives  of  each  of  these  categories  should  "be  formally  invited  to  join  in 
forming  a  Community  Health  Council.    Each  would  be  expected  to  function  as  a  trustee 
of  the  community  rather  than  representatives  of  individual  or  organization  interest. 
A  general  meeting  should  he  called  to  discuss  the  formalization  of  a  Community  Health 
Council  and  to  reach  agreement  on  the  need  for  united  community  action.    Since  much 
work  has  been  completed  by  the  Community  Steering  Committee,  the  new  Council  should 
be  able  to  complete  its  own  organization  and  to  begin  review  of  alternatives.  The 
new  Council  would  then  assume  responsibility  for  planning  and  implementation  of  the 
Community  Health  Services  program. 

The  Council  may  wish  to  function  as  a  whole  or  appoint  committees  to  perform  certain 
functions.    The  use  of  Committees  and  possible  functions  to  be  performed  are  as 
follows : 

1 .  Committee  to  develop  constitution  and  by-laws 

2.  Committees  to  select  consultants  to  work  with  the  Council  and  its  Committees 
if  needed  in  those  areas  where  there  is  limited  expertise: 

-  To  identify  community  groups  and  organizations;  also  might  assist 
in  grant  applications,  data  gathering  and  state  and  national  con- 
tacts for  information  and  assistance. 

3.  Committee  to  finance  the  Council  and  its  programs: 

-  To  collect  and  analyse  data  relative  to  funding  mechanisms  by  identi- 
fying sources  of  payment  for  Council  services,  including  other 
government  and  /or  local  funding,  private  individuals,  foundations, 

insurance  companies,  community  fund  drive,  business,  industry,  etc. 

_.     lcmmi":~ee  ~c  inform  "he  ;cmmuni~y  of  the  Council's  ac~ivx~ies: 

-  To  assist  other  Committees  in  their  relationships  within  and  cu-side 
the  Community. 


-10- 


Ii.    Committee  to  inform  the  community  of  the  Council's  activities  cont'd: 

-  Sevres  as  ccmmunication  medium  between  the  Council  and  community 
residents.    Develop  and  implement  publicity  campaign  regarding 
program  description,  progress,  and  success.    To  recommend  action 
programs  to  the  Council  that  may  he  approved  by  the  community  residents 
and  meet  their  needs. 

3.    Community  Coordinating  Committee: 

-  To  coordinate,  gather  information,  and  determine  those  community 
groups  and  organisations  that  can  best  assist  the  Council  in  its 
activities. 

6.    To  be  responsible  for  functions  outlined  in  Program  Evaluation  Section. 

It  is  estimated  the  Community  Health  Council  can  complete  the  following 
objectives  by  April,  1976: 

1 .  Begin  review  of  alternatives 

2.  Select  a  Board  of  Directors  and  complete  legal  incorporation 

3.  Formalize  committee  structure 

Ij..    Develop  and  adopt  constitution  and  by-laws 

It  is  estimated  the  Community  Health  Council  can  complete  the  following 
objectives  by  June  1,  1976: 

1 .  Select  alternatives 

2.  To  collect  and  analyze  data  relative  to  funding  mechanisms  by  identifying 
sources  of  payment  to  include  governmental  and/or  local  funding. 

The  Council  will  have  the  services  of  a  part-time  staff  person  from  January  1,  1976 
until  June  30,  1976  through  the  cooperation  of  the  Will-Grundy  County  Medical  Society. 
Other  technical  assistance  to  the  Council  can  be  provided  by  the  Will-Grundy-Kankakee 
Comprehensive  Health  Planning  Council  and  by  the  Department  of  Rural  and  Community 
Health  of  the  American  Medical  Association.    It  is  anticipated  that  within  the  six 
month  period,  the  Council  should  be  able  to  determine  if  continued  staffing  is 
needed  and  to  determine  a  payment  mechanism. 


-  11  - 


c 


(the  alternatives  section  will  be  inserted  here) 


c 


PROGRAM  EVALUATION 


Evaluation  is  an  essential  part  of  effective  management  and  should  be  performed 
on  a  continuous  basis  in  order  to  strengthen  the  program.    A  method  of  evaluation 
should  be  incorporated  into  all  aspects  of  the  program  during  its  development. 
Each  program  component  should  be  reviewed  periodically  to  determine  accomplishments 
in  relation  to  operational  objectives.    This  review  of  actual  services  performed 
and  resources  expended  to  planned  services  and  resources  should  include  an  assess- 
ment of  the  effectiveness  and  efficiency,  as  well  as,  the  acceptability  of  the 
services  provided. 

As  a  method  of  evaluation,  this  program  will  attempt  to  develop  a  data  base 
generated  by  the  direct  services  it  provides.    All  visits  to  the  program  will  be 
recorded  as  will  the  direct  services  supplied.    The  number  and  types  of  referrals 
will  be  recorded  as  well  as  the  number  of  vehicle  trips.    These  factors  will  gene- 
rate a  cost  per  patient  for  access  to  health  care.    Data  will  also  be  accumulated 
as  to  the  number  and  type  of  home  visits  provided. 

At  the  end  of  the  first  six  months,  and  each  six  months  thereafter,  documents  will 
be  solicited  from  both  physicians  and  patients.    These  will  give  some  indication 
of  patient  attitude  as  well  as  physician  attitude.    Over  a  period  of  time,  this 
will  provide  an  indication  of  attitudinal  change  on  the  part  of  citizens,  health 
care  providers  and  health  care  institutions. 

It  shall  be  the  responsibility  of  the  Program  Evaluation  Committee  to  develop  the 
proper  documents  to  gather  data,  to  review  the  data  generated  and  to  make  appropri- 
ate recommendations. 

To  emphasise  the  importance  of  program  evaluation,  and  to  assure  the  quality  of 
services  rendered,  it  is  anticipated  the  Council  will  request  the  assistance  of 
the  Quad  River  Foundation  for  Medical  Care  for  the  development  of  criteria  for 
care  services.    It  is  anticipated  this  assistance  will  be  sought  at  such  time  when 
the  Quad  River  Foundation  for  Medical  Care  can  develop  a  mechanism  for  ambulatory 
care  review. 


J